#chronic-illness

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#patient-experience

Revealed: The hidden cost facing arthritis sufferers per year, as one in three with condition 'unable to work'

Arthritis significantly burdens patients financially, with average out-of-pocket costs ranging from €3,581 to €4,281 for those with fair or poor health.

'I was on a constant treadmill of tiredness until a pill changed everything'

A revolutionary new pill called Voxelotor has transformed the life of Dr. Jennifer O'Connor, helping manage her sickle cell disorder effectively.

Revealed: The hidden cost facing arthritis sufferers per year, as one in three with condition 'unable to work'

Arthritis significantly burdens patients financially, with average out-of-pocket costs ranging from €3,581 to €4,281 for those with fair or poor health.

'I was on a constant treadmill of tiredness until a pill changed everything'

A revolutionary new pill called Voxelotor has transformed the life of Dr. Jennifer O'Connor, helping manage her sickle cell disorder effectively.
morepatient-experience
#disability-advocacy

My medical condition makes it risky for me to work in an office. For now, I'm freelancing from home.

Prioritizing health over work is crucial for managing rheumatoid arthritis and seeking supportive work environments.

Meet the 'changemaker' named among 100 most influential disabled people in UK

Georgia Bondy recognized for her impactful work, newly named in the 2024 Shaw Trust Disability Power 100 for her contributions to the disabled community.

My medical condition makes it risky for me to work in an office. For now, I'm freelancing from home.

Prioritizing health over work is crucial for managing rheumatoid arthritis and seeking supportive work environments.

Meet the 'changemaker' named among 100 most influential disabled people in UK

Georgia Bondy recognized for her impactful work, newly named in the 2024 Shaw Trust Disability Power 100 for her contributions to the disabled community.
moredisability-advocacy

Illness Confined Me to My Home. Then a Trip to London Set Me Free

Traveling after confinement can open up one's perspective and opportunities despite ongoing health challenges.
#mental-health

What It's Like to Have Long COVID As a Kid

Chronic illness reshapes personal goals and perceptions, highlighting the importance of adaptation and support.

Suzanne Crowe: Being a carer upends your life, yet many in this situation - most of them women - don't get paid for the work they do

Caring for a loved one involves extensive responsibilities that greatly impact the caregiver's family life and emotional well-being.

Depression And Disability: Can Depression Disable An Individual?

Depression is classified as a psychiatric disability under the Americans with Disability Act, affecting quality of life and work ability.

I'm Ending My Life Today. Here's What I Want You To Know Before I Go.

The author shares their deeply personal struggle with multiple chronic illnesses, culminating in their decision to seek assisted suicide for relief.

Miranda Hart reveals she was bedbound for years' by Lyme disease complications

Miranda Hart shares her struggle with chronic illness and its impact on her career and personal life.

I Haven't Been Entirely Honest With You by Miranda Hart review chronic illness and love at last

Miranda Hart's book serves as a serious manual for living, offering insights from her extensive struggles with chronic illness.

What It's Like to Have Long COVID As a Kid

Chronic illness reshapes personal goals and perceptions, highlighting the importance of adaptation and support.

Suzanne Crowe: Being a carer upends your life, yet many in this situation - most of them women - don't get paid for the work they do

Caring for a loved one involves extensive responsibilities that greatly impact the caregiver's family life and emotional well-being.

Depression And Disability: Can Depression Disable An Individual?

Depression is classified as a psychiatric disability under the Americans with Disability Act, affecting quality of life and work ability.

I'm Ending My Life Today. Here's What I Want You To Know Before I Go.

The author shares their deeply personal struggle with multiple chronic illnesses, culminating in their decision to seek assisted suicide for relief.

Miranda Hart reveals she was bedbound for years' by Lyme disease complications

Miranda Hart shares her struggle with chronic illness and its impact on her career and personal life.

I Haven't Been Entirely Honest With You by Miranda Hart review chronic illness and love at last

Miranda Hart's book serves as a serious manual for living, offering insights from her extensive struggles with chronic illness.
moremental-health

Incorrect arm positioning can lead to false hypertension diagnoses: We make mistakes in measuring blood pressure more often than not'

Hypertension is a silent killer affecting billions, with significant mortality rates and inadequate awareness and control among those affected.

Family Stories and Chronic Illness

Family stories strengthen identity and foster connection, particularly during challenging times.
Telling family stories should include attention, warmth, and empathic perspective-taking.
#friendship

My Friend And I Were Both Misdiagnosed. I Lived. She Didn't.

The article reflects on the emotional toll of chronic illness and the importance of empathy and support in friendships during health struggles.

People Are Sharing The Wildest Medical Self-Diagnoses That Actually Turned Out To Be Correct

The article recounts a friend's struggle with health issues leading to a diagnosis of porphyria, revealing the importance of recognizing rare diseases.

My Friend And I Were Both Misdiagnosed. I Lived. She Didn't.

The article reflects on the emotional toll of chronic illness and the importance of empathy and support in friendships during health struggles.

People Are Sharing The Wildest Medical Self-Diagnoses That Actually Turned Out To Be Correct

The article recounts a friend's struggle with health issues leading to a diagnosis of porphyria, revealing the importance of recognizing rare diseases.
morefriendship
#health

Nearly half of the U.S. population has diabetes or prediabetes-and many have no clue. Are you among them?

Prince Blue's journey emphasizes the hidden challenges of diabetes and its long-term effects on daily life.

I spent 30 days in a coma - and what happened next changed everything

Victoria Cupay's recovery from a severe lupus episode led to a heartfelt marriage proposal and the joy of motherhood, overcoming significant challenges.

The FDA's Disastrous War Against Sleep

Proper sleep is crucial for health; lack of it leads to various severe issues. Understanding natural body rhythms is vital for self-repair and overall well-being.

Nearly half of the U.S. population has diabetes or prediabetes-and many have no clue. Are you among them?

Prince Blue's journey emphasizes the hidden challenges of diabetes and its long-term effects on daily life.

I spent 30 days in a coma - and what happened next changed everything

Victoria Cupay's recovery from a severe lupus episode led to a heartfelt marriage proposal and the joy of motherhood, overcoming significant challenges.

The FDA's Disastrous War Against Sleep

Proper sleep is crucial for health; lack of it leads to various severe issues. Understanding natural body rhythms is vital for self-repair and overall well-being.
morehealth
#healthcare

How AI can make healthcare better and more equitable

AI has significant potential to enhance healthcare by improving disease detection, making care more equitable, and optimizing resource distribution.

Matters of Life and Death

Engaging in meaningful conversations about health can improve the quality of life, even at end-of-life stages.

Her Stomach Pain Was Unbearable. What Was Causing It?

The patient's condition worsened despite medical reassurances, highlighting the importance of listening to patients' concerns and the need for timely medical intervention.

Inflammatory Disease - Implicated in So Many Conditions

Inflammatory conditions are merely different manifestations of a common disease, systemic inflammation, challenging mainstream medical narratives.

How AI can make healthcare better and more equitable

AI has significant potential to enhance healthcare by improving disease detection, making care more equitable, and optimizing resource distribution.

Matters of Life and Death

Engaging in meaningful conversations about health can improve the quality of life, even at end-of-life stages.

Her Stomach Pain Was Unbearable. What Was Causing It?

The patient's condition worsened despite medical reassurances, highlighting the importance of listening to patients' concerns and the need for timely medical intervention.

Inflammatory Disease - Implicated in So Many Conditions

Inflammatory conditions are merely different manifestations of a common disease, systemic inflammation, challenging mainstream medical narratives.
morehealthcare
#health-awareness

'You Are My Lady' singer Freddie Jackson diagnosed with kidney disease: 'Not facing it alone'

Freddie Jackson has been diagnosed with kidney disease and seeks to raise awareness through his partnership with the National Kidney Foundation.

People Are Sharing The Unusual Things Their Bodies Do That They Had No Idea Weren't Actually "Normal"

Many individuals experience unusual bodily functions that are surprising even to medical professionals.

'You Are My Lady' singer Freddie Jackson diagnosed with kidney disease: 'Not facing it alone'

Freddie Jackson has been diagnosed with kidney disease and seeks to raise awareness through his partnership with the National Kidney Foundation.

People Are Sharing The Unusual Things Their Bodies Do That They Had No Idea Weren't Actually "Normal"

Many individuals experience unusual bodily functions that are surprising even to medical professionals.
morehealth-awareness
#public-health

Baby boomers living longer but are in worse health than previous generations

Baby boomers have worse health than previous generations at the same age, despite medical advancements and awareness of healthy lifestyles.

How to Protect Yourself From Wildfire Smoke

Extreme wildfires are worsening and pose severe public health risks, including from wildfire smoke exposure.

The Guardian view on health spending: the NHS needs more than a shot in the arm | Editorial

The NHS funding increase addresses waiting lists, but lacks the transformative impact needed to overcome systemic healthcare challenges.

Ontario hospitals not prepared to handle projected 72% increase in chronic illness: study | CBC News

Ontario's healthcare system must undergo significant reform to manage a projected increase in chronic illness cases by 2040.
Without urgent action, the hospital system in Ontario will struggle to accommodate the upcoming rise in chronic illness cases.

More toilets will take 'worry' out of London travel

Transport for London will invest £15 million in restroom facilities to improve accessibility for those with chronic health conditions, providing greater travel confidence.

Baby boomers living longer but are in worse health than previous generations

Baby boomers have worse health than previous generations at the same age, despite medical advancements and awareness of healthy lifestyles.

How to Protect Yourself From Wildfire Smoke

Extreme wildfires are worsening and pose severe public health risks, including from wildfire smoke exposure.

The Guardian view on health spending: the NHS needs more than a shot in the arm | Editorial

The NHS funding increase addresses waiting lists, but lacks the transformative impact needed to overcome systemic healthcare challenges.

Ontario hospitals not prepared to handle projected 72% increase in chronic illness: study | CBC News

Ontario's healthcare system must undergo significant reform to manage a projected increase in chronic illness cases by 2040.
Without urgent action, the hospital system in Ontario will struggle to accommodate the upcoming rise in chronic illness cases.

More toilets will take 'worry' out of London travel

Transport for London will invest £15 million in restroom facilities to improve accessibility for those with chronic health conditions, providing greater travel confidence.
morepublic-health

In Western North Carolina, Helene's Devastation Is Threatening Health Care Access

Hurricane Helene exacerbated healthcare challenges in rural North Carolina, leaving residents like Tina Abbott struggling to access critical medical resources.
#patient-advocacy

Maeve Boothby O'Neill died because of a discredited view of ME. How was this allowed to happen? | George Monbiot

The tragic death of Maeve Boothby O'Neill highlights the severe mismanagement and misunderstanding of ME/CFS within the healthcare system.

Long Dismissed, Chronic Lyme Disease Is Finally Getting Its Moment

Misdiagnosis can lead to years of suffering and challenges in identifying the root cause of health issues.

I've been tired since I was 13': ME patients hope harrowing inquest will change perceptions

The tragic story of Maeve Boothby O'Neill sheds light on the challenges faced by individuals with ME/CFS and the need for improved understanding and treatment.

This is not a bill': How to decipher explanations of benefits and pay for your medical care

Proactive management of medical bills and proactively negotiating with insurers can significantly reduce unexpected expenses for patients.

Maeve Boothby O'Neill died because of a discredited view of ME. How was this allowed to happen? | George Monbiot

The tragic death of Maeve Boothby O'Neill highlights the severe mismanagement and misunderstanding of ME/CFS within the healthcare system.

Long Dismissed, Chronic Lyme Disease Is Finally Getting Its Moment

Misdiagnosis can lead to years of suffering and challenges in identifying the root cause of health issues.

I've been tired since I was 13': ME patients hope harrowing inquest will change perceptions

The tragic story of Maeve Boothby O'Neill sheds light on the challenges faced by individuals with ME/CFS and the need for improved understanding and treatment.

This is not a bill': How to decipher explanations of benefits and pay for your medical care

Proactive management of medical bills and proactively negotiating with insurers can significantly reduce unexpected expenses for patients.
morepatient-advocacy

Selena Gomez Welled Up After A Comedian Praised Her For A Very Important Reason

Selena Gomez and Melissa Joan Hart connect through their experiences with chronic illnesses, reflecting resilience and uniqueness in their respective artistic journeys.

Opinion | TV Medical Dramas Have Pristine Endings. They Should Be Messier.

Real-life medical dramas often depict adaptation to chronic illness rather than a complete recovery, challenging conventional narratives of medical heroism.

One Show viewers can't believe Miranda Hart's 'surprise' marriage reveal

Miranda Hart found love and married at 51, stressing the importance of hope and joy amidst personal struggles.

What to read this weekend: The Night Guest, Is Earth Exceptional? and Into the Unbeing

Chronic illness can lead to intense struggles with medical professionals, making self-advocacy essential for patients.

Warming climate putting people at greater risk of kidney disease study

Extreme heat exposure is linked to an alarming rise in kidney disease among young outdoor workers. Prolonged exposure contributes to chronic health issues.

Sacked manager wins right to challenge 'cutthroat' corporate practices in court

Sanju Pal is challenging her dismissal from Accenture due to chronic illness and the legality of the firm's 'up or out' policy.

Chronic illness shattered this teen's life. Her service dog helped get it back

Lilla Lanivich relies on her service dog Lopez to help her cope with chronic illnesses and regain independence.

Tech Executive Fired For Peeing In Public Area Of Hotel Sues Former Company For $1.5 Million

Becker is suing Lenovo for $1.5 million, claiming discrimination due to his chronic bladder condition after being fired for urinating in a hotel vestibule.

Chronic Physical Symptoms Involve Patients' Psychology

Psychological interventions should be considered for chronic illness patients, potentially reducing the need for medication.

US study shows difficulty of finding lab test for long Covid: The hunt will go on'

Finding a lab test for long Covid remains challenging, as few distinctions in standard tests exist between affected and unaffected individuals.

The Widowhood Effect: All You Need To Know

66% increased chances of dying within the first three months of a spouse's death, known as the widowhood effect.

Modern Industrialized Farming is Killing Us

Factory farming practices have led to a decline in the quality and nutritional value of food, contributing to widespread chronic illness.

Review of Wynnie Mynerva's 'Presagio' | Berlin Art Link

Wynnie Mynerva challenges norms through provocative art, embracing their chronic illness positively in an unexpected way at Fondazione Memmo in Rome's exhibition, 'Presagio.'

Navigating Harvard with a non-apparent disability - Harvard Gazette %

Non-apparent disabilities affect 10% of the U.S. population
Openness about disabilities can empower students to succeed academically

My Sister Euthanized Herself. She Shouldn't Have Had to Do It the Way She Did.

Chronic illness impact on family and community
Ethical considerations surrounding euthanasia

The drug shortages Floridians will face in 2024. Here's what you should know

Drug shortages continue to threaten access to necessary medications, including treatments for short-term and chronic illnesses.
ADHD medications, chemotherapy drugs, weight-loss drugs, and the antibiotic amoxicillin are among the categories experiencing shortages in 2024.

What to Know About Complementary Treatments for Lupus

Being diagnosed with a chronic illness can be distressing and disorienting
Complementary and integrative forms of care can help address the feelings of stress and powerlessness that accompany chronic illnesses like lupus.
#chronic illness

Silence can be incredibly hurtful': How to talk to someone about their chronic illness

When people stay silent about someone's chronic illness, it can be hurtful and invalidating.
Acknowledging someone's chronic illness can be comforting and validating for them.

How I've Been Shaking Out My Pain Since Losing My Daughter - Tiny Buddha

Movement has incredible healing power.
Making end-of-life decisions for a child is a heartbreaking and difficult process.

Silence can be incredibly hurtful': How to talk to someone about their chronic illness

When people stay silent about someone's chronic illness, it can be hurtful and invalidating.
Acknowledging someone's chronic illness can be comforting and validating for them.

How I've Been Shaking Out My Pain Since Losing My Daughter - Tiny Buddha

Movement has incredible healing power.
Making end-of-life decisions for a child is a heartbreaking and difficult process.
morechronic illness

I have lifelong anorexia. MDMA and mushrooms showed me remission is possible

Psilocybin mushrooms helped combat anorexia, offering transformative experiences and insights.

Porochista Khakpour's Reality Check

Porochista Khakpour, an Iranian American author with multiple health conditions, has a sparsely furnished apartment in Central Harlem where she writes.
Her new novel Tehrangeles is a satirical take on a wealthy Iranian American family in Los Angeles striving for reality TV fame during the pandemic.

TikTok star 'Bella Brave' Thomson dead at 10: 'Our brave girl left her legacy here on earth'

Bella Thomson, also known as Bella Brave, a 10-year-old TikTok star, passed away after facing various health challenges.
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