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Her Company Helps Patients Find Cutting-Edge Treatments | Entrepreneur

Sandra Abrevaya transitioned from public service to CEO of Synapticure to enhance treatment access for ALS and other neurodegenerative diseases.

Genetic Discrimination Is Coming for Us All

Insurance companies can deny coverage based on genetic predispositions, despite customers being healthy at the time of application.
#clinical-trials

Les Turner Symposium on ALS Unites Community Around Research and Patient Care - News Center

The 14th annual Les Turner Symposium on ALS highlights collaborative research efforts aimed at improving understanding and treatment of ALS.

ALS drug will be pulled from US market after study showed patients didn't benefit

Patients won't benefit from failed Lou Gehrig's disease drug, leading to its withdrawal from the market.
Only three ALS medicines left for U.S. patients, with one showing survival extension by several months.

Les Turner Symposium on ALS Unites Community Around Research and Patient Care - News Center

The 14th annual Les Turner Symposium on ALS highlights collaborative research efforts aimed at improving understanding and treatment of ALS.

ALS drug will be pulled from US market after study showed patients didn't benefit

Patients won't benefit from failed Lou Gehrig's disease drug, leading to its withdrawal from the market.
Only three ALS medicines left for U.S. patients, with one showing survival extension by several months.
moreclinical-trials

This week on The Advocates: A drag queen running for office in New York City & diversity at the Oscars

The Advocates episode features inspiring stories of individuals advocating for hope, representation, and mental well-being in contemporary society.
#artificial-intelligence

Groundbreaking Brain Chip Allows Man With ALS to "Speak" Again

A brain-computer interface enables a man with ALS to communicate effectively using a voice that resembles his own, marking significant progress in speech technology.

Brain-computer interfaces tap AI to enable a man with ALS to speak

Brain-computer interfaces enable paralyzed individuals to regain communication and movement by interpreting brain signals with remarkable accuracy.

Researchers use artificial intelligence to help ALS patient speak again

Doctors are using AI to help ALS patients regain their voice by translating brain activity into speech.

Brain-Computer Interfaces Could Get A Significant Boost From AI

Brain-computer interfaces restore lost functions in paralyzed individuals, including speech through advanced neural signal interpretation and AI technology.

ALS took a young mother's voice away. AI helped her regain it

Artificial intelligence technology enabled April Kerner to communicate using a program that replicates her voice, significantly impacting her connection with family.

Groundbreaking Brain Chip Allows Man With ALS to "Speak" Again

A brain-computer interface enables a man with ALS to communicate effectively using a voice that resembles his own, marking significant progress in speech technology.

Brain-computer interfaces tap AI to enable a man with ALS to speak

Brain-computer interfaces enable paralyzed individuals to regain communication and movement by interpreting brain signals with remarkable accuracy.

Researchers use artificial intelligence to help ALS patient speak again

Doctors are using AI to help ALS patients regain their voice by translating brain activity into speech.

Brain-Computer Interfaces Could Get A Significant Boost From AI

Brain-computer interfaces restore lost functions in paralyzed individuals, including speech through advanced neural signal interpretation and AI technology.

ALS took a young mother's voice away. AI helped her regain it

Artificial intelligence technology enabled April Kerner to communicate using a program that replicates her voice, significantly impacting her connection with family.
moreartificial-intelligence
#steve-gleason

Ex-Saint Gleason returns home after hospital stay

Steve Gleason has returned home after a hospital stay amidst Hurricane Francine, showcasing resilience and family support.

Gleason stable after medical scare during hurricane

Steve Gleason is stable and recovering in the hospital after complications following Hurricane Francine.
His advocacy work for ALS continues despite his health challenges.

Ex-Saint Gleason returns home after hospital stay

Steve Gleason has returned home after a hospital stay amidst Hurricane Francine, showcasing resilience and family support.

Gleason stable after medical scare during hurricane

Steve Gleason is stable and recovering in the hospital after complications following Hurricane Francine.
His advocacy work for ALS continues despite his health challenges.
moresteve-gleason
#brain-computer-interface

Brain implant allows ALS patient to control Amazon's Alexa with thought: 'Gives me back the independence that I'm losing'

Mark is the first person to control Amazon Alexa using a brain-computer interface.

A man with ALS can control Amazon's Alexa with his mind using a brain implant

A brain-computer interface has enabled a patient with ALS to control smart devices using only his thoughts, enhancing his independence.

A.L.S. Stole His Voice. A.I. Retrieved It.

Advanced brain-computer interfaces show promise in restoring speech for individuals suffering from A.L.S.

New brain-computer interface allows man with ALS to 'speak' again

The new BCI system allows near-instantaneous speech communication for individuals with severe speech impairments, demonstrating unprecedented accuracy.

Amazon Alexa can now be controlled by thought alone - thanks to this brain implant

Synchron has enabled mind control of Alexa for ALS patients through a brain-computer interface, significantly improving accessibility.

Brain implant allows ALS patient to control Amazon's Alexa with thought: 'Gives me back the independence that I'm losing'

Mark is the first person to control Amazon Alexa using a brain-computer interface.

A man with ALS can control Amazon's Alexa with his mind using a brain implant

A brain-computer interface has enabled a patient with ALS to control smart devices using only his thoughts, enhancing his independence.

A.L.S. Stole His Voice. A.I. Retrieved It.

Advanced brain-computer interfaces show promise in restoring speech for individuals suffering from A.L.S.

New brain-computer interface allows man with ALS to 'speak' again

The new BCI system allows near-instantaneous speech communication for individuals with severe speech impairments, demonstrating unprecedented accuracy.

Amazon Alexa can now be controlled by thought alone - thanks to this brain implant

Synchron has enabled mind control of Alexa for ALS patients through a brain-computer interface, significantly improving accessibility.
morebrain-computer-interface

This gorgeous home is custom-designed for people with ALS

Matt's Place 2.0 provides accessible, prefabricated homes for ALS patients, addressing unique challenges they face in traditional housing.

Longtime NY1 travel reporter Valarie D'Elia dies at 64 after ALS battle, station says

Valarie D'Elia, a beloved NY1 travel reporter, passed away at 64 after battling ALS, leaving a legacy of travel journalism.
Valarie D'Elia emphasized the importance of travel as part of her family history and provided travel advice to her viewers.
#memory

Touching My First Time for the Last Time

The article reflects on a deep, nostalgic connection between two people, highlighting themes of trust, remembrance, and the impact of A.L.S.

Grandma With ALS Shows How She Will Always Be Able To Read To Her Grandkids

Della, a grandma with ALS, creates a lasting memory for her 10 grandchildren by recording videos of herself reading books and linking them to QR codes in the books.

Touching My First Time for the Last Time

The article reflects on a deep, nostalgic connection between two people, highlighting themes of trust, remembrance, and the impact of A.L.S.

Grandma With ALS Shows How She Will Always Be Able To Read To Her Grandkids

Della, a grandma with ALS, creates a lasting memory for her 10 grandchildren by recording videos of herself reading books and linking them to QR codes in the books.
morememory

Remembering Hal Finney: A Decade Since His Passing, His Legacy in Bitcoin Lives On

Hal Finney's contributions to Bitcoin and cryptography were transformative, showcasing his resilience and passion even while battling ALS.

Determined Staten Island Army vet, musician, 44, bravely battles rare strand of ALS

Sean McCann refuses to let his battle with ALS define his passions and pursuits.

A death educator and a knitter walk into a cemetery it's "Grieving & Weaving"

Crafting can serve as a therapeutic tool for coping with grief and fostering connection during difficult times.

Musk details second Neuralink brain implant patient: 'It's working very well'

Neuralink has successfully implanted a second device in a human, showing promising results for patients with spinal cord injuries or ALS.
#steve-mcmichael

Bears great Steve McMichael hospitalized again

Steve McMichael, a Chicago Bears great, is battling ALS and has been hospitalized multiple times recently.
McMichael was voted into the Pro Football Hall of Fame before being hospitalized for a urinary tract infection, pneumonia, and MRSA.

Bears legend McMichael taken to ER, family says

Steve McMichael, former Chicago Bears defensive tackle, has been taken to the emergency room with suspected pneumonia.
McMichael was recently announced as a member of the Pro Football Hall of Fame's Class of 2024.
He was diagnosed with ALS in 2021 and previously hospitalized with pneumonia and sepsis.

Bears great McMichael set to leave hospital Thur.

Steve McMichael battling ALS
McMichael hospitalized with infections

Family: McMichael to be released from hospital

Steve McMichael, former Chicago Bears player, is expected to be released from the hospital after being treated for a urinary tract infection while battling ALS.
McMichael was admitted to the hospital one week after being voted into the Pro Football Hall of Fame and is scheduled to be inducted in August.

Bears legend McMichael undergoing transfusion

Steve McMichael is battling a new infection, following his ALS diagnosis.
McMichael was initially thought to have pneumonia but was later found to have a urinary tract infection.

Bears legend McMichael released from hospital

Steve McMichael, Chicago Bears legend battling ALS, recently hospitalized with various ailments.
McMichael, despite health challenges, receiving support and treatment at home.

Bears great Steve McMichael hospitalized again

Steve McMichael, a Chicago Bears great, is battling ALS and has been hospitalized multiple times recently.
McMichael was voted into the Pro Football Hall of Fame before being hospitalized for a urinary tract infection, pneumonia, and MRSA.

Bears legend McMichael taken to ER, family says

Steve McMichael, former Chicago Bears defensive tackle, has been taken to the emergency room with suspected pneumonia.
McMichael was recently announced as a member of the Pro Football Hall of Fame's Class of 2024.
He was diagnosed with ALS in 2021 and previously hospitalized with pneumonia and sepsis.

Bears great McMichael set to leave hospital Thur.

Steve McMichael battling ALS
McMichael hospitalized with infections

Family: McMichael to be released from hospital

Steve McMichael, former Chicago Bears player, is expected to be released from the hospital after being treated for a urinary tract infection while battling ALS.
McMichael was admitted to the hospital one week after being voted into the Pro Football Hall of Fame and is scheduled to be inducted in August.

Bears legend McMichael undergoing transfusion

Steve McMichael is battling a new infection, following his ALS diagnosis.
McMichael was initially thought to have pneumonia but was later found to have a urinary tract infection.

Bears legend McMichael released from hospital

Steve McMichael, Chicago Bears legend battling ALS, recently hospitalized with various ailments.
McMichael, despite health challenges, receiving support and treatment at home.
moresteve-mcmichael
#research

Do people who exercise more have a lower risk of ALS?

Engaging in moderate levels of physical activity may reduce the risk of ALS in men, according to a new study.

Hochul to Propose $25 Million in State Funding for A.L.S. Research

Governor Kathy Hochul plans to propose a $25 million appropriation for ALS research, one of the largest investments by a state in ALS research.
The program created through the appropriation will support various endeavors, including drug development and potentially provide a model for addressing other rare diseases.

Do people who exercise more have a lower risk of ALS?

Engaging in moderate levels of physical activity may reduce the risk of ALS in men, according to a new study.

Hochul to Propose $25 Million in State Funding for A.L.S. Research

Governor Kathy Hochul plans to propose a $25 million appropriation for ALS research, one of the largest investments by a state in ALS research.
The program created through the appropriation will support various endeavors, including drug development and potentially provide a model for addressing other rare diseases.
moreresearch

Joe Bonsall, Tenor Voice of the Oak Ridge Boys, Dies at 76

Joe Bonsall, the tenor voice of the Oak Ridge Boys for over 50 years, passed away due to complications of ALS. The group achieved immense success and popularity in country music.
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