"I was diagnosed with ALS at 41 years old. That meant my muscles would eventually degenerate, leading to paralysis; it was also terminal. It was a shock."
"In the last six months, I developed nerve pain in my fingers. Touching soft fabric felt like burning. My swallowing and breathing were affected."
"The day I was diagnosed, I knew my life would end with euthanasia. I didn't want to be connected to a machine to breathe."
"I was expecting someone to try to talk me out of euthanasia, but no one close to me did, including more religious people."
A diagnosis of ALS at 41 led to a rapid decline in health, prompting a year-long world tour funded by insurance. Despite enjoying life, the individual faced increasing paralysis and pain. The decision for euthanasia was made for their 44th birthday, allowing a final farewell to loved ones. The support from family and friends remained unwavering, even among those with religious beliefs. The individual prioritized using their voice to say goodbye before losing the ability to communicate.
Read at www.theguardian.com
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