#patient-advocacy

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fromwww.bbc.com
2 days ago

'I feel forgotten after 100 weeks on urgent surgery list'

I can't live my life to the fullest. I can't do the activities I want to do with my kids. I can't do the job that I love. My mental health has declined.
UK politics
#mental-health
Mental health
fromwww.theguardian.com
2 months ago

I had no voice': black mental health patients on surviving a care system they say is racialised

Devon Marston advocates for reform in mental healthcare for minorities, highlighting persistent issues in patient treatment and systemic discrimination.
fromNew York Post
6 days ago
Privacy professionals

Doctors, former patients warn of LASIK eye surgery dangers: 'Biggest scam ever put on the American public'

Mental health
fromwww.theguardian.com
2 months ago

I had no voice': black mental health patients on surviving a care system they say is racialised

Devon Marston advocates for reform in mental healthcare for minorities, highlighting persistent issues in patient treatment and systemic discrimination.
fromNew York Post
6 days ago
Privacy professionals

Doctors, former patients warn of LASIK eye surgery dangers: 'Biggest scam ever put on the American public'

#health-insurance
Healthcare
fromLos Angeles Times
3 months ago

A proposed law could force California health insurers to explain claim denials

Healthcare insurance companies frequently deny necessary treatments, putting families at risk.
Fighting insurance denials can be crucial for patient survival and recovery.
Healthcare
fromFast Company
3 weeks ago

These breakthrough gene therapies cost millions of dollars. Is a mortgage model the secret to paying for them?

Insurers' refusal to cover innovative gene therapies for conditions like sickle cell disease jeopardizes patient access, necessitating creative financing solutions.
Healthcare
fromtime.com
2 weeks ago

When Fighting with Your Insurance Company Becomes a Full-Time Job

Navigating health insurance often leads to substantial time loss for patients, as seen in Erin Massey's struggle to secure coverage for her medication.
Cancer
fromNew York Post
2 weeks ago

Insurance company denies cancer patient potentially life-saving lung transplant

Insurance denial jeopardizes a cancer patient's life-saving lung transplant after initial approval.
Mental health
fromkffhealthnews.org
1 month ago

They won't help me': Sickest patients face insurance denials despite policy fixes

Patients like Sheldon Ekirch face significant challenges with insurance claims, particularly regarding necessary treatments for chronic conditions like small fiber neuropathy.
Healthcare
fromLos Angeles Times
3 months ago

A proposed law could force California health insurers to explain claim denials

Healthcare insurance companies frequently deny necessary treatments, putting families at risk.
Fighting insurance denials can be crucial for patient survival and recovery.
Healthcare
fromFast Company
3 weeks ago

These breakthrough gene therapies cost millions of dollars. Is a mortgage model the secret to paying for them?

Insurers' refusal to cover innovative gene therapies for conditions like sickle cell disease jeopardizes patient access, necessitating creative financing solutions.
Healthcare
fromtime.com
2 weeks ago

When Fighting with Your Insurance Company Becomes a Full-Time Job

Navigating health insurance often leads to substantial time loss for patients, as seen in Erin Massey's struggle to secure coverage for her medication.
Cancer
fromNew York Post
2 weeks ago

Insurance company denies cancer patient potentially life-saving lung transplant

Insurance denial jeopardizes a cancer patient's life-saving lung transplant after initial approval.
Mental health
fromkffhealthnews.org
1 month ago

They won't help me': Sickest patients face insurance denials despite policy fixes

Patients like Sheldon Ekirch face significant challenges with insurance claims, particularly regarding necessary treatments for chronic conditions like small fiber neuropathy.
#cancer-treatment
fromwww.cbc.ca
2 weeks ago
Canada news

Fighting cancer is expensive. Ontario hospital parking fees make it worse, advocates say | CBC News

fromwww.cbc.ca
2 weeks ago
Canada news

Fighting cancer is expensive. Ontario hospital parking fees make it worse, advocates say | CBC News

#healthcare
Healthcare
fromwww.theguardian.com
3 months ago

My $30,000 health insurance claim was denied. Then I tweeted about it

Insurance denial can occur even in clear medical situations, leading to frustration.
Social media can effectively resolve issues with healthcare insurance disputes.
Cancer
fromwww.newsshopper.co.uk
3 months ago

Sydenham mum with cervical cancer claims doctors said symptoms were 'period'

Charley Jayne Law faced misdiagnosis for months before being diagnosed with incurable but treatable cancer.
Mental health
fromPsychology Today
1 month ago

Challenging Medical Ageism After 50

Ageism significantly impacts healthcare outcomes, leading to neglect of older patients.
Medical evaluations for those over 50 should be collaborative, focusing on informed decisions.
Age-based discrimination in healthcare contributes to cognitive decline and worsening health.
OMG science
fromwww.bbc.com
6 months ago

'I found out I had cancer via an answer machine'

Jesse Tristram's journey illustrates the challenges of navigating cancer diagnosis and treatment, emphasizing the importance of self-advocacy within the healthcare system.
Healthcare
fromwww.theguardian.com
3 months ago

My $30,000 health insurance claim was denied. Then I tweeted about it

Insurance denial can occur even in clear medical situations, leading to frustration.
Social media can effectively resolve issues with healthcare insurance disputes.
Cancer
fromwww.newsshopper.co.uk
3 months ago

Sydenham mum with cervical cancer claims doctors said symptoms were 'period'

Charley Jayne Law faced misdiagnosis for months before being diagnosed with incurable but treatable cancer.
Mental health
fromPsychology Today
1 month ago

Challenging Medical Ageism After 50

Ageism significantly impacts healthcare outcomes, leading to neglect of older patients.
Medical evaluations for those over 50 should be collaborative, focusing on informed decisions.
Age-based discrimination in healthcare contributes to cognitive decline and worsening health.
OMG science
fromwww.bbc.com
6 months ago

'I found out I had cancer via an answer machine'

Jesse Tristram's journey illustrates the challenges of navigating cancer diagnosis and treatment, emphasizing the importance of self-advocacy within the healthcare system.
fromwww.bbc.com
3 weeks ago

New mum says maternity treatment was 'traumatic'

Niki Cotson, a mother in chronic pain post-birth, is advocating for North Tees Hospital to be placed in special measures due to alleged poor maternity care.
UK news
#home-care
Cancer
fromwww.eastbaytimes.com
1 month ago

Cancer Support Community's Lafayette expansion reflects a different approach to recovery care

Dexter Louie transitioned from a cancer surgeon to a patient, highlighting the importance of community support during his battle with multiple myeloma.
#cancer-diagnosis
Cancer
fromwww.bbc.com
1 month ago

'I had signs of ovarian cancer and want others to know them'

Joss Cook's experience with misdiagnosed ovarian cancer highlights the importance of awareness of symptoms and early diagnosis.
Cancer
fromwww.bbc.com
1 month ago

'I had signs of ovarian cancer and want others to know them'

Joss Cook's experience with misdiagnosed ovarian cancer highlights the importance of awareness of symptoms and early diagnosis.
#breast-cancer
UK news
fromwww.independent.co.uk
1 month ago

I've got to move to Scotland because I can't get the cancer drug I need in England'

The struggle for access to life-saving treatment exposes the inequality in healthcare across regions.
UK news
fromwww.independent.co.uk
1 month ago

I've got to move to Scotland because I can't get the cancer drug I need in England'

The struggle for access to life-saving treatment exposes the inequality in healthcare across regions.
#health-care
#rare-diseases
OMG science
fromwww.nytimes.com
2 months ago

Drugs Have Uses We Can't Imagine. He's Using A.I. to Find Them.

AI-driven treatment options can significantly impact the care of patients with rare diseases.
Persistence in seeking unconventional solutions can lead to unexpected and life-saving outcomes.
#end-of-life-care
Mental health
fromwww.theguardian.com
2 months ago

We're going to talk about death today your death': a doctor on what it's like to end a life rather than extend one

The article highlights the author's first experience with medical assistance in dying, following its legalization in Canada.
Mental health
fromwww.theguardian.com
2 months ago

We're going to talk about death today your death': a doctor on what it's like to end a life rather than extend one

The article highlights the author's first experience with medical assistance in dying, following its legalization in Canada.
#healthcare-innovation
Roam Research
fromPsychology Today
2 months ago

From Anecdotes to Data: Researching Sleep in a Rare Disorder

Patient communities are vital for advocating research in rare disorders like Moebius syndrome.
A recent study indicates common sleep disturbances in Moebius syndrome.
More extensive research is essential to understand sleep issues in Moebius syndrome.
UK news
fromwww.theguardian.com
2 months ago

Gandalf' accused of selling illegal medicinal cannabis in New Zealand

Police crackdown on medicinal cannabis operation prompts protest from supporters and highlights challenges faced by patients seeking legal access.
#healthcare-inequality
US news
The U.S. organ transplant system is becoming less equitable, with organs often going to less critical patients.
Nearly 20% of organ allocations in 2022 were done out of sequence.
fromIntelligencer
5 months ago
Miscellaneous

The People Cheering the UnitedHealthcare CEO Shooting

The difficulties in navigating the healthcare system can feel more burdensome than the illness itself for patients and families.
US news
The U.S. organ transplant system is becoming less equitable, with organs often going to less critical patients.
Nearly 20% of organ allocations in 2022 were done out of sequence.
#health-awareness
#healthcare-costs
#long-covid
US news
fromwww.npr.org
6 months ago

Long COVID patients push to see federal research refocused on treatments

Long COVID remains a significant health crisis with millions affected and no approved treatments, despite substantial federal funding for research.
Coronavirus
fromenglish.elpais.com
5 months ago

Five years after start of pandemic, no one knows how many people are living with long Covid: They see you as a bum who doesn't want to work'

Estimating the number of long Covid sufferers is difficult due to societal disbelief and the illness's lack of detectable biomarkers.
Medicine
fromkffhealthnews.org
3 months ago

Long-COVID patients are frustrated that federal research hasn't found new treatments

Long COVID affects millions, yet research and treatment advancements remain stagnant.
US news
fromwww.npr.org
6 months ago

Long COVID patients push to see federal research refocused on treatments

Long COVID remains a significant health crisis with millions affected and no approved treatments, despite substantial federal funding for research.
Coronavirus
fromenglish.elpais.com
5 months ago

Five years after start of pandemic, no one knows how many people are living with long Covid: They see you as a bum who doesn't want to work'

Estimating the number of long Covid sufferers is difficult due to societal disbelief and the illness's lack of detectable biomarkers.
Medicine
fromkffhealthnews.org
3 months ago

Long-COVID patients are frustrated that federal research hasn't found new treatments

Long COVID affects millions, yet research and treatment advancements remain stagnant.
fromCornell Chronicle
3 months ago

Physician assistant students launch educational journeys | Cornell Chronicle

"That was the deciding moment for me," said Green, 23, a Westchester County, New York, native and graduate of the University of Texas, Austin.
Medicine
fromBuzzFeed
4 months ago

This 28-Year-Old Woman Is Going Viral For Creating A "Medical Binder" So Doctors Listen To Her

Jessica shared that doctors' responses during her appointments have been positive overall. 'At my first appointment with the binder, the doctor noted, 'She is very well organized and has a binder documenting her medical history.' Previously, my records said things like, 'The patient was unclear and struggled to communicate.'"},{
Medicine
Miscellaneous
fromIndependent
4 months ago

Waiting list 'carousel' - boy (13) finally gets surgery but now faces delay for life-improving therapies

The healthcare system needs reform to prevent delays in necessary surgeries and therapies for patients like Liam.
#healthcare-policy
fromwww.mercurynews.com
5 months ago

Santa Saves Cannabis

The legalization of cannabis in Canada and parts of the United States has led to improved medical options, reduced alcohol consumption, and better overall quality of life for many.
Medicine
fromwww.theguardian.com
7 months ago

Psychedelic Outlaws by Joanna Kempner review a compelling case for the use of magic mushrooms in pain relief

Pain is famously the most difficult to quantify. Both a somatic and psychic experience, pain is a chameleon and stubbornly private, challenging for writers and doctors alike.
Medicine
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