#patient-advocacy

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fromHarvard Gazette
6 days ago

A setback to research that offered hope for Fibrous Dysplasia patients - Harvard Gazette

This funding was more than just a financial award-it was a crucial investment in understanding and eventually treating a devastating disease. Advancing research in FD/MAS benefits those living with this rare disease and holds great potential for broader medical applications.
Health
#healthcare
fromIndependent
3 weeks ago
Public health

'My boy could 100pc travel for spinal surgery but we have never been offered the choice', says mum of teen left on waiting list once again

fromIndependent
3 weeks ago
Public health

'My boy could 100pc travel for spinal surgery but we have never been offered the choice', says mum of teen left on waiting list once again

fromwww.npr.org
1 month ago

The best support for a friend with cancer? Presence, listening and space to vent

The number one complaint is when other people who are well-meaning and sharing, 'I know what you're going through; my grandmother had cancer and, oh, by the way, she died.'
US news
fromPsychology Today
1 month ago

Chronic Migraine Impacts Individuals, Families, and Society

Chronic migraine is not just a headache; it severely impacts daily life, causing emotional strain and affecting family dynamics. Early intervention is critical.
Mental health
fromPsychology Today
2 months ago

Why Patients Aren't Always Right

Patients are increasingly seen as experts of their own bodies, impacting healthcare practices and decisions.
UK news
fromIndependent
2 months ago

Vaginal mesh surgery: I had to go abroad and pay thousands for surgery that, up until 2018, was free to women in this country'

There is a growing push to lift the pause on vaginal mesh surgeries for urinary incontinence in Ireland.
#cervical-cancer
UK news
fromIndependent
2 months ago

'I let go of anger a long time ago'- Leona Macken on staying positive despite cervical cancer diagnosis after 'failings' in screening

Leona Macken settled her case after HSE admitted failures in reporting her cervical smear tests, which resulted in her stage four cancer.
fromIndependent
2 months ago
UK news

'I let go of anger a long time ago'- Leona Macken on staying positive despite cervical cancer diagnosis after 'failings' in screening

UK news
fromIndependent
2 months ago

'I let go of anger a long time ago'- Leona Macken on staying positive despite cervical cancer diagnosis after 'failings' in screening

Leona Macken settled her case after HSE admitted failures in reporting her cervical smear tests, which resulted in her stage four cancer.
fromIndependent
2 months ago
UK news

'I let go of anger a long time ago'- Leona Macken on staying positive despite cervical cancer diagnosis after 'failings' in screening

Social justice
fromABC7 Los Angeles
2 months ago

Justice, IL Quantum Prosthetics seeks to help those with limb loss throughout lives; President Vikram Choudary dedicated to craft

Vikram Choudary empowers limb-loss patients through support and an annual fashion show, fostering confidence and community.
Parenting
fromwww.theguardian.com
2 months ago

Parental intuition better at spotting child illness than vital signs, study finds

Parental intuition can better predict critical illness in children than vital signs, highlighting a need for inclusion in care decisions.
#cancer-treatment
fromwww.cbc.ca
3 months ago
Canada news

Fighting cancer is expensive. Ontario hospital parking fees make it worse, advocates say | CBC News

fromwww.cbc.ca
3 months ago
Canada news

Fighting cancer is expensive. Ontario hospital parking fees make it worse, advocates say | CBC News

fromFast Company
2 months ago

Here's why Trump's plan is unlikely to fix America's dystopian prescription drug problem

The doctor prescribed a medication listed on our insurer's published formulary but faced denials at every turn due to incorrect information and bureaucratic obstacles.
NYC parents
fromwww.bbc.com
2 months ago

'I feel forgotten after 100 weeks on urgent surgery list'

Tracey Meechan's struggle to receive timely treatment for her ovarian cyst highlights the severe impact of NHS waiting times on her life.
Privacy professionals
fromNew York Post
2 months ago

Doctors, former patients warn of LASIK eye surgery dangers: 'Biggest scam ever put on the American public'

The LASIK procedure, while marketed as safe, has led to severe complications and even suicides according to various testimonials.
#health-insurance
Healthcare
fromtime.com
3 months ago

When Fighting with Your Insurance Company Becomes a Full-Time Job

Navigating health insurance often leads to substantial time loss for patients, as seen in Erin Massey's struggle to secure coverage for her medication.
Cancer
fromNew York Post
3 months ago

Insurance company denies cancer patient potentially life-saving lung transplant

Insurance denial jeopardizes a cancer patient's life-saving lung transplant after initial approval.
fromwww.bbc.com
3 months ago

New mum says maternity treatment was 'traumatic'

Niki Cotson, a mother in chronic pain post-birth, is advocating for North Tees Hospital to be placed in special measures due to alleged poor maternity care.
UK news
Healthcare
fromFast Company
3 months ago

These breakthrough gene therapies cost millions of dollars. Is a mortgage model the secret to paying for them?

Insurers' refusal to cover innovative gene therapies for conditions like sickle cell disease jeopardizes patient access, necessitating creative financing solutions.
Renovation
fromwww.hamhigh.co.uk
3 months ago

Fears for hospice's future after Raac concrete found

The Marie Curie Hampstead Hospice's closure, linked to structural issues, has raised concerns about the future of inpatient hospice care and the shift to home care.
fromwww.eastbaytimes.com
3 months ago

Cancer Support Community's Lafayette expansion reflects a different approach to recovery care

Dexter Louie transitioned from a cancer surgeon to a patient, highlighting the importance of community support during his battle with multiple myeloma.
fromwww.bbc.com
3 months ago

'I had signs of ovarian cancer and want others to know them'

Joss Cook's experience with misdiagnosed ovarian cancer highlights the importance of awareness of symptoms and early diagnosis.
Mental health
fromPsychology Today
3 months ago

Challenging Medical Ageism After 50

Ageism significantly impacts healthcare outcomes, leading to neglect of older patients.
Medical evaluations for those over 50 should be collaborative, focusing on informed decisions.
Age-based discrimination in healthcare contributes to cognitive decline and worsening health.
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