#patient-advocacy

#patient-advocacy

Women face alarming dismissals from medical staff regarding their pregnancy concerns, leading to severe consequences for both mother and child.

Patients should investigate dental options thoroughly before undergoing procedures to avoid complications.

Aggressive marketing of fast dental solutions like ClearChoice can mislead patients regarding the actual complexity of care needed.

Darius Paduch has been accused of exploiting over 310 male patients in a historic sexual abuse case, raising alarm about trust in healthcare.

Beth Hillman highlights the urgent need for separate emergency care for cancer patients after her father's traumatic experience in A&E.

Pain is a complex, subjective experience that poses challenges for both writers and medical professionals.

The insertion of an IUD can cause severe pain, leading to calls for improved communication and pain management in gynecological procedures.

Chronic pain profoundly impacts daily life, often feeling indescribable and all-consuming.

Patients with advanced breast cancer in the UK are denied Enhertu, a drug that could extend their lives, due to funding decisions by NICE.

Ananda Lewis, battling Stage 4 breast cancer, reflects on her treatment choices and the importance of sharing personal cancer journeys despite criticism.

The tragic death of Maeve Boothby O'Neill highlights the severe mismanagement and misunderstanding of ME/CFS within the healthcare system.

Proactive management of medical bills and proactively negotiating with insurers can significantly reduce unexpected expenses for patients.

The tragic story of Maeve Boothby O'Neill sheds light on the challenges faced by individuals with ME/CFS and the need for improved understanding and treatment.

Misdiagnosis can lead to years of suffering and challenges in identifying the root cause of health issues.

Health insurance denials are common and often lead to patients foregoing necessary medical care.

The denial of insurance authorization for necessary antidepressant medication can have profound emotional and psychological effects on patients.

Miriam Staunton is advocating for better access to cancer treatments and trials based on her personal experience with melanoma.

Christine Campbell, terminally ill with ovarian cancer, finds hope and advocacy through treatment and aims to raise awareness about ovarian cancer.

Mejia's story highlights the desperation of cancer patients seeking innovative treatments, even when those options may be illegal or unsafe.

Completing cancer treatment at Guy's Hospital after immunotherapy

Advocating for cancer patients to start treatment within two months of referral

Ontario lacks coverage for take-home cancer drugs, causing financial burden for patients.

Canadian Cancer Society urges Ontario to fund take-home cancer drugs like IV medications.

Persistent symptoms should not be ignored; they can indicate serious health issues.

Dr. Soania Mathur was diagnosed with Parkinson's disease at 28, leading to her shift from family medicine to patient advocacy.

Frances Kelsey’s actions prevented thalidomide's U.S. approval, protecting many from its devastating impact seen globally.

Women apologize often in healthcare settings, reflecting historical diminishment by the medical establishment.

Dr. Comen's book explores the roots of women's tendency to apologize and the impact on their healthcare experiences.

Jo Shaw Pyke endured misdiagnosis for 18 months before discovering rare vulvar mucosal melanoma, emphasizing the importance of proper medical evaluations.

Susan Axelby warns that young women with breast implants may be at risk of a rare cancer linked to implants.

Pat Gately highlights the importance of awareness and early diagnosis in the fight against Multiple Myeloma through his Miles for Myeloma campaign.

Rob Ricco's cancer journey highlights the importance of early detection and seeking specialized care, which can offer new hope even in dire situations.

UHL's emergency department acknowledges reduced but persisting risk, striving for enhanced safety measures post-Aoife's death.

The combination emergency room and urgent care center model aims to simplify patient decision-making and potentially save them significant costs on healthcare services.

The mistreatment of First Nations people in healthcare instills a deep-rooted fear in Indigenous mothers regarding childbirth and their rights.

Advocating for appropriate medical care is crucial, especially in women's health, where many feel dismissed by healthcare professionals.

New York City is launching the nation's largest medical debt relief program, investing $18 million to cancel over $2 billion in medical debt for half a million residents.

The program only requires residents to have a household income at or below 400% of the federal poverty level or have medical debt equal to 5% of their annual household income.

The rise of multimillion-dollar gene therapies is pushing employers to drop coverage, leaving families in desperate situations.

Advocating for yourself regarding medical bills can yield significant financial relief.

Patients are tampering with Ozempic and Mounjaro pens to extend doses due to high costs.

The White House may implement a rule that could either save or cost patients billions in prescription drug expenses.

State lawmakers are working to address excessive hospital facility fees for routine services, resulting in unexpected additional charges for patients and dissatisfaction among employers and patients.

Misdiagnosis can lead to unfairly dismissing a patient's pain, as experienced by a young girl due to a neurologist's oversight.

The importance of thorough investigation and referrals in medical diagnosis, particularly regarding mental health and neurological conditions.

Misdiagnosis led to terminal illness for a Cavan-based chef.

Advocacy groups for people with long Covid and secondary illnesses feel that they are forgotten and poorly treated by doctors.

Some individuals with long Covid and mast cell activation syndrome (MCAS) have experienced anger and disbelief from doctors.

The National Institute for Health and Care Excellence defines long Covid as symptoms that persist for more than 12 weeks and are not explained by another diagnosis.

Meaghan O'Brien, a stroke survivor, has graduated as an Irish Heart Foundation patient champion to advocate for heart and stroke patients.

O'Brien defied doctors by regaining the ability to walk and returning to work.

The Patient Champion programme will involve advocating for fellow patients and lobbying for their needs in policy decisions.