#dravet-syndrome
#dravet-syndrome
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#gene-therapy #clinical-trials #epilepsy-treatment #genetic-treatment #seizure-management #genetic-medicine
#gene-therapy
Medicine
fromNews Center
11 hours agoFirst Gene Regulation Clinical Trials for Epilepsy Show Promising Results - News Center
Zorevunersen, a gene-regulation therapy, demonstrates safety and effectiveness in reducing seizures and improving developmental outcomes in Dravet syndrome patients by targeting the underlying genetic cause.
fromwww.bbc.com
1 week agoParents of gravely ill child refused respite care
It is really, really hard. He said the family had 'cried and begged for help' in meetings at home. 'Does our family unit have to break down? Does it have to get to a point where we no longer sustain this and then they'll step in and give you support? Because right now that's where we're at. We don't have any alternatives. If grandparents were an option, we'd already be doing it.'
Public health
fromABC7 San Francisco
5 months agoBay Area mom fights to keep epileptic daughter in school after district can't accommodate her
I think it's different, but we're still in the same situation: still stuck at home, and not with her peers, and not getting education. They don't care that she's not at school,
California
fromwww.bbc.com
6 months agoShoulder injury forces Surrey bowler Dunn to retire
Unfortunately, I've been struggling with a shoulder injury for the last 14 months now, I had a surgery in January, tried my best this year to come back, took multiple injections, but unfortunately, we've reached a point where we're kind of out of options medically. For me, the club is, and has been, an absolutely massive part of my life for a long time and it will be for a long time. I don't think you ever really do properly leave this place.
UK news
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