I cannot adequately describe how frightening it is to discover there are no doctors who can help you, they do not even know what is wrong with you. I am fighting for a chance to live. By March 2021, her ME was so severe that she was unable to sit up, hold a cup to her lips or chew.
She was admitted to hospital, desperate to find a way of taking on food and drink. Despite the pain she was in, she clearly still wanted to live but, in the end, was hardly able to move, communicate or tolerate light, sound or touch not even a loving hug.
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