Journalist Amanda Hess explores the emotional rollercoaster of discovering her unborn son had Beckwith-Wiedemann syndrome (BWS) after a routine ultrasound. Despite initial charm, doctors warned of potential genetic risks. The diagnosis led to extensive tests, which heightened her anxiety. Frustrated by misleading information online suggesting maternal blame for such conditions, Hess battled her fears. After a long labor and C-section, the moment she met her son melted away her worries; she realized the depth of their real relationship overshadowed the concerns she had imagined during her pregnancy.
I was charmed by the visual, but my doctors warned that it might be a sign of a rare genetic condition.
After several weeks of tests, when I was about eight months pregnant, we learned that my son has Beckwith-Wiedemann syndrome.
Itâs completely ludicrous; I know that my sonâs genetic condition was not caused by something I thought during pregnancy.
But after his birth, those fears disappeared. He was a person, finally, who I had a real relationship with.
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