"Some are experiencing their fifth year with the agonizing illness. And despite the roughly $1.6 billion that the National Institutes of Health has received for long Covid research, not a single drug has yet been approved."
"The Patient-Led Research Collaborative has been raising funds and directing them to promising research projects and punching far above its weight, elevating the voice and expertise of those who experience this illness."
"Many of the group's founding members met in online patient support groups in the spring of 2020, when they felt they couldn't get doctors to take their problems seriously."
"The initial survey revealed patterns and symptoms that the medical establishment had not yet noticed, justifiably described by scientists as having put long Covid on the map."
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