In a candid social media post, Lili discussed her struggles with depression and a recent diagnosis of interstitial cystitis, calling 2024 the hardest year of her life. She emphasized the importance of self-advocacy in health matters, encouraging others not to let medical professionals undermine their pain. Dr. Emily C. Von Bargen provided insight into interstitial cystitis symptoms, which include persistent pain and pressure that may resemble a urinary tract infection but lack a clear diagnosis. Lili hopes her experience resonates with others facing similar health challenges.
Being diagnosed with interstitial cystitis while simultaneously searching for answers about a mysterious autoimmunity/inflammatory disease made 2024 the hardest year of my life.
The most important thing I have taken away from this experience is the absolute need to advocate for your own health. Do not let a doctor gaslight you or diminish your pain.
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