#pediatric-icu

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#neuromyelitis-optica #autoimmune-neurology #critical-illness #parental-grief #water-bead-ingestion
Medicine
fromBuzzFeed
3 days ago

When My Daughter Received A Life-Altering Diagnosis, I Heard This 1 Phrase. I'll Never Repeat It.

A 9-year-old's neuromyelitis optica diagnosis led to rapid neurologic decline, prolonged pediatric ICU care, and profound parental devastation.
fromBusiness Insider
1 month ago

My baby nearly died after swallowing a water bead. It inspired me to become a nurse to help others.

The procedures were complex, but I was determined to learn from the hospital team to understand what Kennedy was going through. As a parent, it was important for me to stay involved at every step. I spent hours online reading medical literature about her condition, which was caused by a single toxic bead expanding and lodging in her gut. I didn't just sign the permission forms without asking the doctors to fully explain the pros and cons.
Medicine
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