'Please listen to the parents' - mother's plea at inquest into death of boy with rare heart condition
A 12-year-old boy with a rare heart condition died after sepsis; transfer requests to Crumlin Children's Hospital were ignored despite his mother's urgent appeals.
Christmas uncertainty for family of girl with rare condition
"The Gosh charity gave Zarwa a really amazing Christmas," Fahima said. "She went to sleep and woke up to find her ward covered in twinkling lights and decorations. She had a stocking packed with gifts."