""The Gosh charity gave Zarwa a really amazing Christmas," Fahima said. "She went to sleep and woke up to find her ward covered in twinkling lights and decorations. She had a stocking packed with gifts.""
""And she got to meet the Grinch," she added. "She had watched the film so many times and couldn't believe she met him in the flesh. So we can say the Grinch saved Christmas for us.""
Zarwa is a seven-year-old girl from London with geleophysic dysplasia, a rare form of dwarfism affecting just over 30 people worldwide. The condition causes a too-small airway, breathing difficulties and repeated hospital admissions since infancy. Treatment has been provided at Great Ormond Street Hospital since 2020, and her family spent last Christmas in hospital. The hospital charity decorated the ward, supplied a stocking of gifts, ran arts and crafts activities, and arranged visits from Santa and the Grinch. At home, Zarwa is described as sassy, loud, and fond of music, Disney films, singing and arts and crafts. Early childhood included recurring chest infections and a narrowed heart valve detected in 2018.
Read at www.bbc.com
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