fromThe Independent
1 week agoWhat is Epidermolysis Bullosa? Eddie Vedder's new Netflix doc raises awareness
Epidermolysis Bullosa is a rare, life-threatening genetic skin disorder that mostly affects children. The condition causes fragile, blistering skin, and those who have it are sometimes called "butterfly children" as their skin is considered as fragile and easy-to-break as a butterfly's wing. People born with EB lack critical proteins that bind the skin's two layers together. Without these proteins, the skin tears apart easily, leading to severe pain, disfigurement, and internal and external wounds.
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