Pads-M's season-series winner to get Vedder CupThe Padres and Mariners will compete for the Vedder Cup, designed by Eddie Vedder, with proceeds supporting Epidermolysis Bullosa research.
Marathon bid by Colin Farrell and close friend with skin disorder raises over 500,000Emma Fogarty's 'Run to 40' challenge raises significant funds for EB charity while highlighting her personal struggles with the severe condition.
'Magic still exists' - Dublin Marathon team Colin Farrell and Emma Fogarty raise over 775k so far for charity DebraEmma Fogarty, Ireland’s longest-surviving person with EB, has raised significant funds for support through her inspirational participation in Dublin Marathon.
Pads-M's season-series winner to get Vedder CupThe Padres and Mariners will compete for the Vedder Cup, designed by Eddie Vedder, with proceeds supporting Epidermolysis Bullosa research.
Marathon bid by Colin Farrell and close friend with skin disorder raises over 500,000Emma Fogarty's 'Run to 40' challenge raises significant funds for EB charity while highlighting her personal struggles with the severe condition.
'Magic still exists' - Dublin Marathon team Colin Farrell and Emma Fogarty raise over 775k so far for charity DebraEmma Fogarty, Ireland’s longest-surviving person with EB, has raised significant funds for support through her inspirational participation in Dublin Marathon.
Dublin girl with rare skin disease excited to go to secondary schoolCasey Connors, 12, is preparing for secondary school while managing her condition, epidermolysis bullosa, with strong family and community support.
Colin Farrell completes Dublin marathon while pushing friend in a wheelchair, raises over $700,000 for charityColin Farrell completed the Dublin marathon pushing his friend Emma Fogarty's wheelchair, raising awareness for her rare skin disorder, Epidermolysis Bullosa.
'She is what courage is all about' - Colin Farrell pushes friend Emma Fogarty across Dublin Marathon finish line as more than 22,000 runners take partColin Farrell raised over €700,000 for Debra Ireland, supporting individuals with epidermolysis bullosa (EB) by completing a marathon.
Colin Farrell's Dublin marathon run raises 774,000 for charityColin Farrell supports EB awareness and fundraising through marathon run, illustrating community strength and resilience of individuals living with the condition.
Colin Farrell completes Dublin marathon while pushing friend in a wheelchair, raises over $700,000 for charityColin Farrell completed the Dublin marathon pushing his friend Emma Fogarty's wheelchair, raising awareness for her rare skin disorder, Epidermolysis Bullosa.
'She is what courage is all about' - Colin Farrell pushes friend Emma Fogarty across Dublin Marathon finish line as more than 22,000 runners take partColin Farrell raised over €700,000 for Debra Ireland, supporting individuals with epidermolysis bullosa (EB) by completing a marathon.
Colin Farrell's Dublin marathon run raises 774,000 for charityColin Farrell supports EB awareness and fundraising through marathon run, illustrating community strength and resilience of individuals living with the condition.
'EB has shaped our whole lives, it's a monster' - mum of Dublin woman with 'butterfly skin' disease in plea for better careFamilies of individuals with rare disorders face challenges due to gaps in care.