The young woman carried a notebook full of her medical records to her first independent doctor visit, shifting from dependence on her parents to self-advocacy.
She recounted her first episode of illness at age four, which involved paralysis and confusion, highlighting the long journey she faced with her autoimmune disorder.
Her diagnosis of acute disseminated encephalomyelitis (ADEM) illuminated the complexities of her condition, demonstrating how an autoimmune response can affect the central nervous system.
ADEM is typically seen in young children post-infection, which brought to light the challenges of understanding and managing a rare condition over many years.
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