Linde Jacobs, a Minnesota woman, is advocating for awareness and understanding of a rare form of dementia after her mother, Alison Lee, faced a challenging and undiagnosed battle with the disease. After losing her mother in 2022, Jacobs experiences the emotional toll of coping with her loss while raising her two young daughters. Jacobs shares her mother’s unusual behaviors that led to an eventual, though delayed, recognition of her condition. This journey underscores the importance of proper diagnosis and the impact of genetic predispositions to cognitive disorders.
Jacobs speaks about her mother, stating, 'Some of her impulses... were boundary-less... she didn't realize the social norms we place on what is appropriate.'
Jacobs reflected on her diagnosis, saying, 'I was speechless in that appointment... it was something so shocking that I really didn't know how to grasp it and internalize it.'
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