"Ellie James, 36, has been campaigning for all hospitals to freeze brain tumour tissue removed during surgery for use in vaccines or research, with the issue set to be debated by MPs in Parliament on Wednesday. James said husband Owain had wanted his experience to "change things for the better for others", as his access to an immunotherapy vaccine was limited after only a small amount of useable tissue was kept for future treatment."
"The mum-of-one, who lives in Caerphilly, saw her campaign for the NHS in Wales to adopt "Owain's Law" rejected last year after the issue was debated in the Welsh Parliament - where its health secretary told MSs that bringing it in could have "unintended consequences". But James' local MP, Chris Evans, will lead a Commons debate on the topic on Wednesday, as she hopes the changes could be implemented across the UK."
"Half of the tumour was removed, and doctors said the best they could do for him would be to control the rest of the tumour temporarily. He and his wife decided to try an immunotherapy vaccine which was not offered on the NHS, which was based on his tumour tissue. But of the 7cm removed of tumour tissue, only 1cm was frozen and could be used. Following this treatment, the remaining tumour fully regressed."
Ellie James, 36, is campaigning for all hospitals to freeze brain tumour tissue removed during surgery so it can be used for vaccines or research. Her husband Owain was diagnosed at 34 with a malignant stage four brain tumour; half the tumour was removed and they tried an immunotherapy vaccine based on his tumour tissue. Of the 7cm removed, only 1cm was frozen for future treatment. The remaining tumour regressed after the vaccine but a new tumour appeared nine months later and he died in June 2024. A Welsh attempt to adopt "Owain's Law" was rejected; a Commons debate is scheduled. The UK government announced a A313.7m investment to develop new brain tumour treatments.
Read at www.bbc.com
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