"The number one thing that worries family caregivers for adults with an intellectual or developmental disability isn't money or safety. It's the future."
"These are hard, awkward conversations. Facing the future may mean confronting difficult questions and frightening scenarios."
"Nobody wants to talk about death, and they're overwhelmed with the questions they may not have answers to."
"It gets easier the more you do it."
Noreen Vance's sister Angela has severe Down syndrome and requires daily assistance. Their mother, who cared for Angela, avoided discussing future care plans. After suffering a stroke, she could not manage caregiving, leading to family chaos and delayed care for Angela. A study shows that 72% of caregivers for individuals with Down syndrome worry about the future, especially after their own death. Contingency planning is crucial but challenging, as many caregivers fear discussing difficult topics like death and the unknown.
Read at www.npr.org
Unable to calculate read time
Collection
[
|
...
]