Gabrielius Misurenkovas, a 12-year-old boy affected by recessive dystrophic epidermolysis bullosa (RDEB), has gained more freedom to engage in activities such as football and biking through participation in a clinical trial at Great Ormond Street Hospital. RDEB is a severely debilitating condition, marked by extraordinarily fragile skin that easily blister and wounds, impacting around 150 children in the UK. Currently, there are no effective treatments available, and symptoms are managed primarily through wound care and ointments, making the trial an exciting opportunity for Gabrielius to improve his quality of life.
Gabrielius Misurenkovas, a 12-year-old boy suffering from recessive dystrophic epidermolysis bullosa (RDEB), has found new freedom to enjoy sports thanks to a new clinical trial.
RDEB is a debilitating condition characterized by extremely fragile skin that causes blistering and deep wounds, affecting only about 150 children in the UK.
#clinical-trials #recessive-dystrophic-epidermolysis-bullosa #pediatric-health #rare-diseases #patient-advocacy
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