23andMe, once valued at $6 billion, has filed for Chapter 11 bankruptcy and the CEO has stepped down. This raises concerns about the privacy of customers' genetic data, particularly due to the potential for new ownership to change existing privacy policies. California consumers have certain rights regarding data deletion, while customers elsewhere may not have the same protections. Experts warn that without a national health privacy law, individuals remain vulnerable. Customers are advised to download their data and consider deleting their accounts.
"This situation really brings home the point that there is still no national health privacy law in the US protecting your rights unless you live in California or Washington."
"The risk of entrusting genetic data to any institution is twofold-the organization could fail to protect it, but it could also hand over customer data to a new entity that they may not trust and didn't choose."
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