The article discusses the importance of maintaining an 'energy envelope' for those suffering from ME/CFS and long COVID, who often face post-exertional malaise (PEM) after overexertion. The author, having fully recovered, reflects on the journey and emphasizes the need for a deeper understanding of chronic fatigue through neuroscience. Recent findings suggest that our perception of reality is shaped more by the brain's predictions than by mere sensory input, changing how we view fatigue and its chronic nature. Advocacy for affected individuals is central to the author's mission.
"After meticulous efforts not to exceed your energy envelope, you may have achieved some hard-won, yet tentative stability... attempting the activity, you find yourself hit by a fresh wave of symptoms."
"In looking back after fully recovering from ME/CFS and long COVID, I now spend much of my time thinking about how to help others escape the quagmire."
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