Amanda Reed faced with an incomprehensible choice for her newborn twins diagnosed with SMA, discovered a gene therapy priced at $4.2 million but found her employer had ceased coverage for such expensive treatments, presenting a dire dilemma for families in urgent need of life-saving care.
Despite the potential of innovative gene therapies to address severe genetic conditions, financial limits imposed by self-insured employers like Mosaic Life Care have forced families into desperate situations, where critical treatments may be out of reach due to cost constraints.
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