A report reveals that patients with sickle cell disease are hesitant to seek ambulance care due to previous negative experiences, such as inadequate pain relief and a lack of respect from medical personnel. The London Ambulance Service is taking steps to improve care with training for front-line staff and better pain management. Additional concerns include slow response times and insufficient patient involvement in care. Testimonials from patients highlight a perception that they are often dismissed or misunderstood by ambulance services, emphasizing the need for systemic improvements in care.
There is a general consensus that the majority of people spoken to are very reluctant to call the ambulance service unless it is the only and last resort and the pain is so bad they have no excuse but to go hospital.
We need to continue to support the needs of patients with sickle cell disorder and ensure that staff have a basic understanding of the sickle cell disorder.
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