#sickle-cell-disease

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#blood-donation

Brooklyn Filmmaker Spotlights Struggles And Triumphs of Teen With Sickle Cell Disease

Keenan 'Special' Bristol's film highlights the struggles of those with sickle cell disease and the need for compatible blood donations.

'Giving blood is important and costs nothing'

Blood donations in London have significantly dropped post-December, impacting availability for critical blood types, especially among communities needing specific support.

Brooklyn Filmmaker Spotlights Struggles And Triumphs of Teen With Sickle Cell Disease

Keenan 'Special' Bristol's film highlights the struggles of those with sickle cell disease and the need for compatible blood donations.

'Giving blood is important and costs nothing'

Blood donations in London have significantly dropped post-December, impacting availability for critical blood types, especially among communities needing specific support.
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#gene-editing

CRISPR genome-editing grows up: advanced therapies head for the clinic

Gene-editing therapies like Casgevy show long-lasting benefits for blood disorders but face challenges in accessibility due to complexity and cost.

The World's First Crispr Drug Gets a Slow Start

Casgevy is the first approved CRISPR gene-editing treatment available, but complexities hinder widespread patient access.

The First Crispr Treatment Is Making Its Way to Patients

The first CRISPR-based treatment, Casgevy, has been approved for sickle cell disease and beta thalassemia, marking a significant advance in gene-editing therapies.

CRISPR genome-editing grows up: advanced therapies head for the clinic

Gene-editing therapies like Casgevy show long-lasting benefits for blood disorders but face challenges in accessibility due to complexity and cost.

The World's First Crispr Drug Gets a Slow Start

Casgevy is the first approved CRISPR gene-editing treatment available, but complexities hinder widespread patient access.

The First Crispr Treatment Is Making Its Way to Patients

The first CRISPR-based treatment, Casgevy, has been approved for sickle cell disease and beta thalassemia, marking a significant advance in gene-editing therapies.
moregene-editing

Black man with sickle cell disease died naked and alone' in cell

Quality journalism is vital for addressing urgent social issues, including prison healthcare and reproductive rights, and should be accessible to all.
#gene-therapy

Sickle cell gene therapies roll out slowly

FDA has approved the first genetic treatments for sickle cell disease, offering new hope to patients like Olaide Adekanbi.

First Sickle Cell Gene Therapy Patient, 12, Leaves Hospital

Kendric Cromer received the first gene therapy for sickle cell disease, representing a significant breakthrough in treatment.

First Day of a New Life' for a Boy With Sickle Cell

Kendric Cromer starts a hopeful journey free from sickle cell disease thanks to new gene therapy.

Gene Therapies Could Transform Treatment of Rare Blood Disorders - News Center

Gene therapy shows promising results in treating rare genetic blood disorders like beta thalassemia and sickle cell disease.

New Jersey college student suffering from sickle cell disease has newfound hope with gene therapy at CHOP

Gene therapy at Children's Hospital of Philadelphia offers new hope for sickle cell disease, potentially being a life-changing treatment.

First Patient Begins Newly Approved Sickle Cell Gene Therapy

Commercially approved gene therapy offers hope to sickle cell patients like Kendric Cromer, potentially leading to a cure.

Sickle cell gene therapies roll out slowly

FDA has approved the first genetic treatments for sickle cell disease, offering new hope to patients like Olaide Adekanbi.

First Sickle Cell Gene Therapy Patient, 12, Leaves Hospital

Kendric Cromer received the first gene therapy for sickle cell disease, representing a significant breakthrough in treatment.

First Day of a New Life' for a Boy With Sickle Cell

Kendric Cromer starts a hopeful journey free from sickle cell disease thanks to new gene therapy.

Gene Therapies Could Transform Treatment of Rare Blood Disorders - News Center

Gene therapy shows promising results in treating rare genetic blood disorders like beta thalassemia and sickle cell disease.

New Jersey college student suffering from sickle cell disease has newfound hope with gene therapy at CHOP

Gene therapy at Children's Hospital of Philadelphia offers new hope for sickle cell disease, potentially being a life-changing treatment.

First Patient Begins Newly Approved Sickle Cell Gene Therapy

Commercially approved gene therapy offers hope to sickle cell patients like Kendric Cromer, potentially leading to a cure.
moregene-therapy

What Is Sickle Cell Disease?

Sickle cell disease is caused by a point mutation in the HBB gene that impacts hemoglobin function and structure.

Meet the Advocates and Researchers Revolutionizing Sickle Cell Care

Widespread newborn screening is essential to combat sickle cell disease effectively in Nigeria.

New Sickle Cell Treatments Reach Patients after Years of Effort

Sickle cell disease is complicated, affecting treatment despite a single genetic cause.
Research is multifaceted, targeting multiple levels to address the disease's complexity.

Doctors cured her sickle-cell disease. So why is she still in pain?

Genesis Jones underwent a stem cell transplant to cure her sickle-cell disease, but continues to face significant health challenges and isolation post-treatment.

Innovative Thinking Could Make New Sickle Cell Treatments More Accessible

Gene therapies for sickle cell disease offer hope for functional cure, but high costs and accessibility challenges remain.

Life-changing' sickle cell drug approved for NHS roll-out after patient-led campaign

Successful patient-led appeal leads to new sickle cell treatment recommendation by NICE in the UK.

The Fight to Pay for Gene Therapy

Sickle-cell disease causes inflammation, pain, and blocked blood flow due to misshapen red blood cells.
Racism and lack of empathy in healthcare pose barriers to adequate pain management for sickle-cell patients.

New Queen's Hospital machine for disease that 'affects every aspect of life'

Spectra Optia Apheresis system benefits sickle cell patients by reducing transfusions and managing pain.
Raising awareness about sickle cell, antenatal screening, and treatments like red cell exchange are crucial for effective management.

Former Patriot Devin McCourty honored as 'Hero Among Us' at Celtics game

Devin McCourty, former Patriots safety, was honored with the Celtics' 'Hero Among Us' award for his work in the community.
McCourty and his twin brother co-founded 'Tackle Sickle Cell' over 10 years ago to raise awareness for the disease and have raised over $1.2 million for Boston Medical Center.

'I hope new test will change lives of rare blood disease sufferers like me'

Genetic test for sickle cell disease rolled out across NHS
Test helps match blood transfusions to patients with sickle cell disease

I told my high school friend we'd battle sickle cell together. But she didn't make it past 18

Sickle cell disease is a common inherited disorder in Kenya, affecting millions globally.
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