#sickle-cell-disease tag

Insurers' refusal to cover innovative gene therapies for conditions like sickle cell disease jeopardizes patient access, necessitating creative financing solutions.

more#gene-therapy

fromwww.bbc.com

1 month ago

Sickle cell patients not listened to - report

There is a general consensus that the majority of people spoken to are very reluctant to call the ambulance service unless it is the only and last resort and the pain is so bad they have no excuse but to go hospital.

London politics

Brooklyn Filmmaker Spotlights Struggles And Triumphs of Teen With Sickle Cell Disease

Keenan 'Special' Bristol's film highlights the struggles of those with sickle cell disease and the need for compatible blood donations.

fromwww.bbc.com

5 months ago

Miscellaneous

'Giving blood is important and costs nothing'

fromwww.bbc.com

2 months ago

London politics

South Londoners roll up their sleeves to save lives

Brooklyn

fromBKReader

5 months ago

Brooklyn Filmmaker Spotlights Struggles And Triumphs of Teen With Sickle Cell Disease

Keenan 'Special' Bristol's film highlights the struggles of those with sickle cell disease and the need for compatible blood donations.

fromwww.bbc.com

5 months ago

Miscellaneous

'Giving blood is important and costs nothing'

fromwww.bbc.com

2 months ago

London politics

South Londoners roll up their sleeves to save lives

The World's First Crispr Drug Gets a Slow Start

Casgevy is the first approved CRISPR gene-editing treatment available, but complexities hinder widespread patient access.

Medicine

fromWIRED

7 months ago

The First Crispr Treatment Is Making Its Way to Patients

The first CRISPR-based treatment, Casgevy, has been approved for sickle cell disease and beta thalassemia, marking a significant advance in gene-editing therapies.

OMG science

fromWIRED

5 months ago

The World's First Crispr Drug Gets a Slow Start

Casgevy is the first approved CRISPR gene-editing treatment available, but complexities hinder widespread patient access.

Medicine

fromWIRED

7 months ago

The First Crispr Treatment Is Making Its Way to Patients

The first CRISPR-based treatment, Casgevy, has been approved for sickle cell disease and beta thalassemia, marking a significant advance in gene-editing therapies.

more#crispr

#sickle-cell-disease#sickle-cell-disease

'I'm a rare blood donor but it's not a superpower'

UK sickle cell patients get worse care than sufferers of similar disorders'

'I'm a rare blood donor but it's not a superpower'

UK sickle cell patients get worse care than sufferers of similar disorders'

New Jersey teen pain-free thanks to new sickle cell disease treatment

Sickle cell patients to have quicker and more accessible treatment in England

New Jersey teen pain-free thanks to new sickle cell disease treatment

Sickle cell patients to have quicker and more accessible treatment in England

Long Island patient gets breakthrough sickle cell treatment called a 'cure': 'I'm not in pain anymore'

These breakthrough gene therapies cost millions of dollars. Is a mortgage model the secret to paying for them?

Long Island patient gets breakthrough sickle cell treatment called a 'cure': 'I'm not in pain anymore'

These breakthrough gene therapies cost millions of dollars. Is a mortgage model the secret to paying for them?

Sickle cell patients not listened to - report

Brooklyn Filmmaker Spotlights Struggles And Triumphs of Teen With Sickle Cell Disease

'Giving blood is important and costs nothing'

South Londoners roll up their sleeves to save lives

Brooklyn Filmmaker Spotlights Struggles And Triumphs of Teen With Sickle Cell Disease

'Giving blood is important and costs nothing'

South Londoners roll up their sleeves to save lives

The World's First Crispr Drug Gets a Slow Start

The First Crispr Treatment Is Making Its Way to Patients

The World's First Crispr Drug Gets a Slow Start

The First Crispr Treatment Is Making Its Way to Patients

#sickle-cell-disease
#sickle-cell-disease