Director Mei Fa Tan reflects on her time working with Prince Frederik of Luxembourg, who battled the rare genetic disorder PolG. Tan was commissioned to create an educational film about the disease, inspired by Frederik's resilience despite his deteriorating health. His struggle with the disorder, which affects energy production in cells, was difficult for Tan to witness. Frederik passed away at age 22, leaving behind a legacy through his foundation, which aims to promote research and find a cure. Tan's insights highlight Frederik's intelligence, humor, and dignity amidst his challenges.
"[He was] so interested in so many topics. He would love to talk about basically anything... But his body would not allow him to do as much."
"I mean, the situation is very grave, but he would always keep his dignity in all situations and keep his sense of humor."
"For Frederik, he just started to experience lots of things, and everything was taken away from him, bit by bit in an inevitable way."
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