Gov. Gavin Newsom recently signed SB 1099, allowing California to continue concealing specifics about its newborn genetic biobank, sparking concern over transparency and research usage.
The bill mandates the California Department of Public Health to disclose only the number of stored and sold newborn DNA samples, but not details on researchers or purposes.
Despite a decade-long investigation's revelations, California still preserves the confidentiality surrounding the usage of newborn DNA, raising significant concerns among privacy advocates about governmental transparency.
Privacy advocates expressed disappointment as detailed requirements were stripped from SB 1099, indicating ongoing struggles for accountability in how California uses newborn blood samples.
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