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Calls for SMA screening ignored before Jesy Nelson campaign, say families

Newborn screening for spinal muscular atrophy type 1 is urgently needed as families face diagnosis delays and feel advocacy has been ignored despite government attention.

Public health

fromIrish Independent

3 weeks ago

Singer Jesy Nelson reveals her twins are unlikely to walk after diagnosis: 'I literally feel like my whole life has done a 360'

Singer's newborn twins were diagnosed with SMA1, received lifesaving treatment, and face ongoing hospital care with uncertain long-term motor outcomes.

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Calls for SMA screening ignored before Jesy Nelson campaign, say families

Singer Jesy Nelson reveals her twins are unlikely to walk after diagnosis: 'I literally feel like my whole life has done a 360'

#sma1
#sma1