#sickle cell disease

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#sickle-cell-disease
Public health
fromwww.bbc.com
7 months ago

Father and daughter launch book for sickle cell disease awareness

A children's book uses Angel's and her father's experiences to raise sickle cell awareness and encourage blood donations in Black communities.
Medicine
fromwww.scientificamerican.com
1 week ago

The scientists whose work led to a game-changing therapy for sickle cell disease worry those most vulnerable can't access it

Gene therapies for sickle cell disease and beta-thalassemia show promise by enabling production of healthy hemoglobin, potentially curing patients.
Public health
fromwww.bbc.com
2 months ago

Emergency sickle cell help extended after campaign

Royal London Hospital's sickle cell emergency unit will remain open permanently after receiving £1m additional investment following a successful pilot campaign.
more#sickle-cell-disease
Medicine
fromwww.bbc.com
2 months ago

Woman with rare blood feels 'honoured' to donate

A 26-year-old woman with extremely rare blood type U negative and N negative is one of only nine UK donors with this combination, making her blood invaluable for patients requiring matching transfusions.
fromThe Atlantic
5 months ago

The Rarest of All Diseases Are Becoming Treatable

For a decade after its discovery, CRISPR gene editing was stuck on the cusp of transforming medicine. Then, in 2023, scientists started using it on sickle-cell disease, and Victoria Gray, a patient who lived with constant pain-like lightning inside her body, she has said -got the first-ever FDA-approved CRISPR gene-editing treatment. Her symptoms vanished; so did virtually everyone else's in the clinical trial she was a part of.
Science
Medicine
fromBusiness Insider
6 months ago

Needle-free blood tests offer painless solution for squeamish patients

Needle-free devices like TAP enable painless at-home blood collection, improving access for patients with difficult veins and reducing the distress of repeated blood draws.
fromLos Angeles Times
9 months ago

Doctors at Cedars-Sinai develop AI-powered mental health 'robot' therapist

"Hi, and welcome. My name is Xaia, and I'm your mental health ally. How can I help?" The virtual reality experience provided comfort and relief for users.
Digital life
#blood-donation
more#blood-donation
Healthcare
fromFast Company
1 year ago

These breakthrough gene therapies cost millions of dollars. Is a mortgage model the secret to paying for them?

Insurers' refusal to cover innovative gene therapies for conditions like sickle cell disease jeopardizes patient access, necessitating creative financing solutions.
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