#post-polio-syndrome

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Medicine
fromPsychology Today
5 days ago

The Problem With 'Medically Unexplained' Symptoms

Many patients suffer from unexplained symptoms despite normal tests, and emerging research offers new insights into persistent physical symptoms and treatment options.
Mental health
fromBustle
1 week ago

How These Women Are Changing The Conversation Around Narcolepsy Type 1

Narcolepsy type 1 (NT1) is a neurological disorder affecting sleep regulation, often misdiagnosed, especially in women.
SF parents
fromwww.bbc.com
2 weeks ago

My daughter has childhood dementia and may not live past 16

Sophia Scott's family faces the challenges of her rare, incurable condition, Sanfilippo syndrome, which causes childhood dementia and impacts their lives significantly.
Medicine
fromwww.businessinsider.com
1 week ago

POTS explained: The disorder that forced OpenAI exec Fidji Simo to take medical leave

Fidji Simo is taking medical leave to treat postural tachycardia syndrome, a condition affecting the autonomic nervous system.
Cancer
fromSlate Magazine
2 weeks ago

I Was Once Given Just Three Years to Live. A Specific Kind of Hope Could Help Cancer Patients Like Me.

A hip injury worsened over a year, leading to an MRI that revealed serious health issues requiring medical attention.
Mental health
fromPsychology Today
2 weeks ago

Remembering an Angel With a Traumatic Brain Injury

Laura, despite severe brain damage, radiated joy and built meaningful connections with caregivers, enriching their lives through her infectious spirit.
#long-covid
Medicine
fromMail Online
2 weeks ago

Common antidepressant may reduce long Covid fatigue, claim researchers

Fluvoxamine may alleviate long Covid fatigue, showing improvements in quality of life with fewer side effects compared to placebo.
Coronavirus
fromLos Angeles Times
1 month ago

Long COVID leaves thousands of L.A. county residents sick, broke and ignored

Long COVID remains a life-altering chronic condition affecting thousands in L.A. County despite the end of the public health emergency, causing invisible disability with limited medical support and social understanding.
fromwww.bbc.com
3 weeks ago

Woman with 'agonising' condition to 'give back'

I have been so well looked after that I wanted to find some way to not only give something back, but also to raise the profile of this awful condition.
Fundraising
fromThe Walrus
3 weeks ago

What I Learned from Breaking My Pelvis for the Second Time | The Walrus

On a sunny and warmish late-November day, my husband and I were meeting some close relatives to deposit our brother-in-law's ashes in a columbarium beside the remains of his late wife, my husband's only sibling. She had died during the pandemic, and her husband had subsequently moved away, but none of us were going to let the grim reaper separate a couple who had been conjoined by a lifetime of shared experiences.
Writing
#chronic-illness
Mental health
fromPsychology Today
2 weeks ago

The Invisible Losses of Chronic Illness

Chronic illness often leads to hidden struggles, requiring individuals to grieve losses while pursuing meaning and connection for a better future.
fromPsychology Today
1 month ago
Health

What Tired and Fatigued Really Mean to the Chronically Ill

Chronic illness fatigue differs fundamentally from normal tiredness; rest doesn't resolve it, and sufferers often rely on adrenaline to complete necessary tasks, resulting in significant physical and mental consequences.
Mental health
fromPsychology Today
2 weeks ago

The Invisible Losses of Chronic Illness

Chronic illness often leads to hidden struggles, requiring individuals to grieve losses while pursuing meaning and connection for a better future.
Medicine
fromwww.bbc.com
2 weeks ago

Our skin is falling off and no-one can tell us why

Topical steroid withdrawal (TSW) is a serious condition affecting many eczema patients, leading to severe skin reactions and inadequate medical recognition.
Mindfulness
fromPsychology Today
1 month ago

Rest and Chronic Illness

Rest is essential for managing chronic illness fatigue, with quality and detachment from stressors being key factors in optimizing its benefits.
Exercise
fromScienceDaily
1 month ago

Millions with joint pain and osteoarthritis are missing the most powerful treatment

Exercise is the most effective treatment for osteoarthritis, yet fewer than half of patients are referred to it, with many instead receiving unnecessary treatments or premature surgery.
Miscellaneous
fromIndependent
2 months ago

Post Viral Syndrome: What exactly is the condition that caused Mairead McGuinness to pull out of the Presidential election?

About 10% of people with similar post-viral conditions never recover; Mairead McGuinness withdrew from the presidential race due to severe post-viral syndrome.
fromwww.bbc.com
1 month ago

I woke up from an operation in agony and the pain never went away

It felt like I had a needle through my back, and it was coming out my front, and I couldn't twist past it. Your mental health is affected. You get brain fog, you're tired, you're fatigued. You can't function as a woman and that's every day for 10 years.
Healthcare
fromwww.theguardian.com
1 month ago

The steroids made me feel alone': Southampton's Amy Goddard on being diagnosed with Bell's palsy

It was really hard at that time, I have never been in such a dark place before. I feel like the steroids made me feel alone. I have such a supportive family, but it put me in a pit and I didn't know how to get out of it. I had insomnia and I know that is an effect from the steroids, but I didn't realise how much I would be affected by it.
Medicine
fromwww.bbc.com
1 month ago

Parents of gravely ill child refused respite care

It is really, really hard. He said the family had 'cried and begged for help' in meetings at home. 'Does our family unit have to break down? Does it have to get to a point where we no longer sustain this and then they'll step in and give you support? Because right now that's where we're at. We don't have any alternatives. If grandparents were an option, we'd already be doing it.'
Public health
Science
fromNews Center
2 months ago

Targeting Key Proteins in Fight Against ALS - News Center

RAD23 controls both degradation and stabilization of misfolded proteins; reducing RAD23 enhances clearance of disease-linked aggregates, offering a therapeutic target for neurodegenerative proteostasis dysfunction.
#spinal-cord-injury
Medicine
fromwww.bbc.com
1 month ago

I spent 13 years in pain before doctors finally worked out why

Endometriosis diagnosis is significantly delayed in the UK, with patients waiting an average of nine years and four months, often dismissed as other conditions despite severe symptoms.
Mental health
fromPsychology Today
1 month ago

A Unique Chance for Long-Term Care

A Utah facility will provide long-term, tiered mental health and substance use treatment for people experiencing homelessness, replacing short-term "treat and street" approaches.
Mental health
fromPsychology Today
2 months ago

The Power of Community in Huntington's Disease

A gene-positive, asymptomatic Huntington's Disease carrier hesitates to join community support due to isolation, pride, and fear, but recognizes potential benefits.
Medicine
fromPsychology Today
2 months ago

Fatigue: A Frustrating Symptom of Chronic Illness

Acceptance of illness-related fatigue and using energy audits with occupational therapy and psychotherapy principles helps people with chronic illness live better.
fromwww.bbc.com
1 month ago

Stroke survivors trial new at-home tech: 'It's given me my freedom back'

"I heard a pop in my head, like a big bubble," she said. "I tried to scream, but it wasn't a normal scream. I knew something wasn't right."
Medicine
Medicine
fromBustle
2 months ago

Why Even Supportive Partners Can Struggle To Understand Migraines

Migraines are complex, multi-day neurological disorders whose invisible symptoms complicate understanding, support, and communication within intimate relationships.
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