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Public health
fromwww.theguardian.com
5 days ago

We were sitting with our calculator saying we can afford that!' Joy for families as cystic fibrosis drug prices fall within reach

Generic manufacturer will offer Vertex's cystic fibrosis ETI therapy for as little as $2,000 a year, a 99.5% price reduction after parent-led campaigning.
Medicine
fromTruthout
1 week ago

The FDA's Lax Generic Drug Rules Can Put Patients' Lives at Risk

A double-lung transplant restored breathing but subsequent severe respiratory decline raised concerns about post-transplant complications and changes in immunosuppressive medication.
Philosophy
fromApaonline
1 month ago

Seasick in My Own Skin: Reflections on Chronic Disease

A cystic fibrosis diagnosis and potent medications produced severe physical side effects and forced a painful reassessment of identity and control.
Health
fromNews Center
4 months ago

New Wireless Sweat Patch May Improve Cystic Fibrosis Treatment - News Center

A new wearable device accurately measures biomarkers in sweat to enhance clinical decision-making for cystic fibrosis.
fromwww.dw.com
6 months ago

Libya's broken healthcare system drives locals to migrate DW 07/06/2025

For the past seven years, Sohan's family has paid for private lab tests in neighboring Tunisia and ordered medication through private pharmacies. Without this medication, Sohan would not have been able to survive until today.
Public health
NYC politics
fromThe Nation
8 months ago

Inside the Bloodbath at the NIH

Trikafta's development exemplifies successful collaboration in American biomedical research between public and private sectors, transforming cystic fibrosis treatment.
The rapid FDA approval of Trikafta significantly improved treatment options for children with cystic fibrosis.
#julian-benson
fromIrish Independent
8 months ago
Chelsea

Funeral details announced for TV star Julian Benson, who died aged 54

Julian Benson, a choreographer and advocate for cystic fibrosis, passed away at 54 after battling the disease, inspiring many through his foundation.
fromIrish Independent
8 months ago
Chelsea

Julian Benson, former Dancing With The Stars judge dies, aged 54

Julian Benson, a TV star and advocate for cystic fibrosis awareness, passed away after a courageous battle, leaving behind a lasting legacy.
more#julian-benson
fromIrish Independent
8 months ago

Larry Bass: Julian Benson was bright, brilliant and used his illness to ease plight of others

Julian was a larger than life character whose dynamism made him stand out as the perfect choice for the Dancing with the Stars panel.
Juventus
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