Julian Benson, known for his vibrant personality and contributions to dance, passed away peacefully at St Vincent's Hospital at the age of 54. Diagnosed with cystic fibrosis as a child, he exceeded expectations and advocated for patients through the Julian Benson CF Foundation, which he founded after publicly revealing his condition in 2018. Following a kidney transplant last October, Benson's death, surrounded by family and friends, marks a significant loss. His work included developing Tranquility House for families affected by cystic fibrosis, alongside his role as a beloved judge on Dancing with the Stars.
"It is with deep sadness that we announce the passing of our beloved Julian Benson. Julian passed away peacefully, surrounded by his loving family and closest friends, after a courageous battle with Cystic Fibrosis."
"Diagnosed with cystic fibrosis at an early age, Mr Benson's mother Maura was told he would not live into his teens."
"Mr Benson became widely known in 2017 when he became a judge on RTÉ's Dancing with the Stars, known as 'Captain Sparkle' due to his flamboyant outfits."
"He revealed his diagnosis publicly for the first time in an appearance on the Late Late Show in 2018 and went on to found the Julian Benson CF Foundation."
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