#children-of-the-moon
#children-of-the-moon

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Nihal, Child of the Moon: how she lives with extreme UV sensitivity

Xeroderma pigmentosum is a rare genetic disorder affecting approximately 100 people in France, causing extreme UV sensitivity and requiring constant protective equipment to prevent skin cancer risk 4,000 times higher than the general population.

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#children-of-the-moon#children-of-the-moon

Nihal, Child of the Moon: how she lives with extreme UV sensitivity

#children-of-the-moon
#children-of-the-moon