#rare-genetic-disorder
#rare-genetic-disorder

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Nihal, Child of the Moon: how she lives with extreme UV sensitivity

Xeroderma pigmentosum is a rare genetic disorder affecting approximately 100 people in France, causing extreme UV sensitivity and requiring constant protective equipment to prevent skin cancer risk 4,000 times higher than the general population.

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#rare-genetic-disorder#rare-genetic-disorder

Nihal, Child of the Moon: how she lives with extreme UV sensitivity

#rare-genetic-disorder
#rare-genetic-disorder