Scientific data in Europe faces significant threats, especially in light of the Trump administration's actions, prompting concerns among researchers about preserving access to threatened datasets. Maria Leptin emphasized the precarious situation of U.S.-hosted data and the urgency for Europe to take stronger measures to safeguard essential resources in public health, climate, and diversity research. She highlighted initiatives like the Global Biodata Coalition and mentioned alarming issues surrounding health data raised in recent workshops, stressing the critical dependence of medical research on accessible data amid increasing data fragmentation and siloing issues.
We've heard the situation from the U.S. where some data are disappearing, where databases are being stopped, and this is really a wake-up call that we as a community need to do more about this and Europe needs to do more about it.
Medical research critically depends on the maintenance and the availability of core data resources, and that is currently at risk. Some of these resources may disappear.
Right now is the worst time to not have access to data in view of the power of AI and the advances in computing, large language models, et cetera.
The value of the data that are held across Europe is unfortunately massively reduced because of fragmentation, siloing, and uneven access.
#scientific-data #research-protection #data-access #global-biodata-coalition #european-research-council
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