Lucy Edwards, a blind TikTok creator, is excited but conflicted about starting a family through IVF with genetic testing to avoid her hereditary condition, Incontinentia Pigmenti. Lucy, who lost her sight at age 17, must consider the implications of potentially editing out the gene that shaped her identity. The couple's choice reflects a broader societal debate over genetic selection and personal identity, as they weigh the potential outcomes of pregnancy, influenced by Lucy's family's medical history. The process raises profound ethical questions regarding identity and the nature of parental choice.
I'm so broody. This is an emotive topic of debate. The IVF will edit out the very thing that has made Lucy who she is today.
Without medical intervention, Lucy says there would be four potential outcomes to any pregnancy she carried. A healthy and unaffected boy or girl, an affected boy or an affected girl.
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