The article explores a mother's journey as she grapples with her daughter's diagnosis of polymicrogyria, a rare brain condition. Rather than focusing on her fears initially, she immersed herself in research, seeking specialists and therapies. However, the real struggle emerged when she realized societal perceptions and expectations could impact her daughter's experiences. She reflects on the anxiety of encountering environments that weren't accommodating, highlighting the emotional toll on families with neurodivergent children. Through connecting with other families, she acknowledges shared challenges in navigating societal norms and the implications for her daughter's future.
I made spreadsheets. I found specialists. I learned about therapies I'd never heard of. I listened to every piece of advice I could find and tried to follow it all.
I started wondering: is this going to be forever? Will every classroom, every birthday party, every playground bring with it another reminder that she's not fitting someone else's version of 'typical'?
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