"His disease is misdiagnosed, it's missed, it's misunderstood, so finally getting to a diagnosis was key so that I could learn what frontotemporal dementia is and I could educate our children."
"The family respects the way I'm looking after him; they really support me. If I need to vent, if I need to cry, if I need to rage - because all of that can happen and it's okay to have those feelings - they are always there to listen."
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