"I was very happy, but I noticed that her eyes were very bright. I was worried because she wasn't looking at me and I thought she was blind," said Delgado, 41.
Doctors in Venezuela investigated the case for years. They discovered Muñoz Delgado had experienced hypoxia at birth and gave her a diagnosis of Rett syndrome. But it wasn't until the family came to the United States that doctors were able to reach a correct diagnosis in 2021: A faulty gene was the source of Muñoz Delgado's neurodevelopmental disorder.
"My daughter was like a guinea pig. But no one could figure out what was wrong," said Delgado. "She would cry and cry. There were constant tears and nothing would calm her down."
"You know what it's like 17 years to wait for an answer about what your daughter has?" said Delgado.
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