The article discusses the profound exhaustion faced by parents of children with PANDAS/AE, highlighting the emotional toll of seeking help and being doubted by medical professionals. The author shares a personal story of an encounter with a young neurologist who dismissed her knowledge and experience, reducing her to just an overwhelmed mother. This experience reflects a common struggle for many parents in similar situations, who feel invalidated and misunderstood while navigating complex health challenges for their children.
"I recognized in the parents I see as a therapist that bone-deep exhaustion not just from sleepless nights and relentless worry, but from the battle to be believed."
"Instead of offering sympathy, he said, 'Are you sure there's no family history of mental illness?' I felt deeply uncomfortable in that moment."
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