âThirty years ago, I don't think many pediatricians knew what Fragile X Syndrome was, let alone how to test for it and diagnosis it. There were no clinical trials to even consider.â
âToday, pediatricians can conduct a simple genetic test for FXS and there are multiple clinical trials underway in hopes of introducing new, effective treatments for this genetic disorder. It's so important for families to participate in these trials because they may open doors that help our entire FXS community.â
When Gregg learned about a new approach to clinical trials that has emerged allowing for at-home participation, he noted, âthat would have been a game changer for our family!â
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