Tell us about your experience living with PCOS

"More than one in 10 women of reproductive age have a hormonal disorder which can have wide-ranging health effects, including on metabolism, skin, mental health and the reproductive and cardiovascular systems. Despite these diverse symptoms, the condition is known as polycystic ovary syndrome, or PCOS. It is a name many experts and those living with the disease says is reductive and misleading, prompting a global initiative working to formally rename PCOS to something that more accurately reflects the disease."

"Leading researchers say the name's focus on ovarian cysts overlooks the condition's metabolic, cardiovascular, hormonal, and psychological features leading to confusion, delayed diagnosis, and inadequate care that is well documented globally. If you are living with PCOS and feel comfortable sharing, we would like to hear about your experience, symptoms, and what a name change would mean to you. Share your experience Your responses, which can be anonymous, are secure as the form is encrypted and only the Guardian has access to your contributions."

More than one in 10 women of reproductive age have a hormonal disorder that can affect metabolism, skin, mental health, reproductive function, and the cardiovascular system. The condition is commonly named polycystic ovary syndrome (PCOS). Many experts and people with the condition consider that name reductive and misleading. The name's focus on ovarian cysts overlooks metabolic, cardiovascular, hormonal, and psychological features, contributing to confusion, delayed diagnosis, and inadequate care worldwide. A global initiative is working to rename PCOS to a term that more accurately reflects the disease. People with PCOS are invited to share experiences securely and anonymously; contributions are encrypted and accessible only to the Guardian and will be deleted when no longer required.

Read at www.theguardian.com