Children's Health Ireland (CHI) is developing standardized guidelines for managing intersex conditions, addressing concerns around terminology and promoting patient-centered decision-making.
CHI acknowledged that terms like intersex can be controversial and potentially pejorative, indicating that patients often prefer not to identify as intersex individuals.
As part of its involvement in the DSD registry, CHI is taking part in a surveillance study of gonadectomy, underscoring its research commitment to intersex health.
Research indicates that patient care requires comprehensive multi-disciplinary discussions, ensuring that families are informed and involved in decisions about surgical interventions.
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