"The genetic condition - which is caused by early fusion of the bones in the uterus - strikes people differently. In my case, it led to the premature fusion of my skull and elbows, also affecting some of my fingers and toes. My parents, Angela and Chip, now 55, relocated to Louisville, where I had several cranial procedures when I was young."
"Mom and Dad were incredibly supportive. Mom didn't treat me any differently, as if I were fragile. I would climb the stairs just as much as my cousins did. I tried not to limit myself, despite being challenged by the lower range of motion in my arms. I couldn't lift them beyond my breastbone and could only touch my face with two fingers."
Brooke Parrish, 29, is a higher education admissions advisor and TikToker in Louisville, Kentucky. She was diagnosed with Pfeiffer syndrome at birth after referral to a Louisville hospital. The condition caused early fusion of bones, resulting in premature fusion of her skull and elbows and affecting some fingers and toes. Her parents relocated to Louisville so she could receive cranial surgeries. She endured intense pain from operations and limited arm motion but remained active and supported by her parents. She hid her facial differences as a teen, growing bangs to cover her eyes, and later gained confidence and began embracing her appearance.
Read at Business Insider
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