"We've changed the standards to a presumptive diagnosis recognising that women are the best narrators of their own experience, the best narrators of their own pain,"
"There are so very many including young girls including much older women like myself and everybody in between who have really not had the experience of being heard or being treated in a way that's going to be successful for them."
"Many women who have had many surgeries here that haven't worked, women here who have exhausted the surgical opportunities here and have ultimately gone and travelled abroad whether it's to Romania, to Poland, to the United Kingdom and got surgery that ultimately did work for them."
The HSE developed a national framework to reflect patient concerns and transform recognition and treatment of endometriosis across the country. Endometriosis is a chronic condition in which tissue similar to the uterine lining grows outside the uterus, often around ovaries, fallopian tubes, and pelvic tissues, causing inflammation and significant pain. The framework adopts presumptive diagnosis so general practitioners and clinicians treat reported symptoms as indicative of the condition. Care will span primary care to complex tertiary services, with moderate cases managed in five specialist centres; three are operating and two more are in development. Many women report not being heard and some travel abroad for effective surgery.
Read at Irish Independent
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