'My son, 4, has childhood dementia - I'm heartbroken'
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'My son, 4, has childhood dementia - I'm heartbroken'
"Tammy, 33, said her main focus was on making precious memories with her son, as there is currently no cure for his condition. Tate, who has always been non-verbal, was diagnosed with autism at the age of two. "Deep down I always suspected there was something more," said Tammy. She added that her "little sidekick" made her "a very proud mum". "From day one he really has been the most happy and content little boy," she said."
""He could climb before he could walk. I just want him to be able to do this for as long as possible," she said. "My handsome little man won't live to see his 18th birthday. My heart is broken and honestly, I am one drained mumma." After setting up a GoFundMe page and receiving thousands of pounds within days, Tammy said it was "the first time in a long while I have felt hope"."
Tammy McDaid, from Swansea, cares for her four-year-old son Tate, who has been diagnosed with Sanfilippo syndrome, a form of childhood dementia that is expected to prevent survival to adulthood. Tate was non-verbal and received an autism diagnosis at age two before the Sanfilippo diagnosis. Tammy has set a £11,000 fundraising goal to pursue clinical trials abroad that might slow disease progression, especially mobility regression. Community donations and support from the Ty Hafan children’s hospice have brought rapid funds and renewed hope while the family focuses on creating cherished memories.
Read at www.bbc.com
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