My chronic pain and fatigue was put down to fibromyalgia, but it was Ehlers-Danlos Syndrome
Briefly

Ehlers-Danlos Syndrome (EDS) is a connective tissue disorder that results in chronic pain and fatigue, often leading to misdiagnosis. Ursula Hakman, a 59-year-old woman from Dun Laoghaire, spent her childhood suffering from severe pain, especially while navigating stairs. Throughout her life, she also dealt with recurring gastrointestinal issues that compounded her health challenges. At 52, Ursula received a diagnosis of EDS after decades of unexplainable pain and discomfort, which helped contextualize her earlier experiences of suffering.
Ehlers-Danlos Syndrome is a connective tissue disorder that can cause chronic pain and fatigue among other symptoms.
Ursula Hakman has lived a life marked by debilitating pain, especially during childhood, walking up or down the stairs.
She battled recurring gastrointestinal problems throughout her life, which contributed to her struggles with health.
Decades of persistent pain were later explained by a diagnosis of Ehlers-Danlos Syndrome at the age of 52.
Read at Independent
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