'EB has shaped our whole lives, it's a monster' - mum of Dublin woman with 'butterfly skin' disease in plea for better care

The family of a young woman with a rare and excruciating disorder, often described as 'butterfly skin', feel like 'prisoners' due to gaps in her care.

Claudia Collins, 20, from Dublin, suffers from the severe form of epidermolysis bullosa (EB), requiring constant care and bandages due to her fragile skin.

Read at Irish Independent