"As Ireland's oldest Irish survivor of genetic skin condition epidermolysis bullosa, reaching 40 was bittersweet for Emma Fogarty. Here, she talks about her daily struggle with butterfly skin, being bullied as a teenager and creating change with best friend Colin Farrell by her side For Emma Fogarty, the Killashee Hotel in Naas is like a home from home. In the grounds lies Emma's Butterfly Garden, a space she created back in 2012,"
"where people affected by the genetic disorder epidermolysis bullosa (EB) can enjoy some peace and tranquillity. Both of which are in short supply this afternoon inside the hotel, given that wedding and funeral events are taking place. Elsewhere in the hotel, Simon Harris is also a guest speaker at a County Chamber event, meaning that the security detail in the hotel is (given recent events, understandably) significant."
Emma Fogarty is Ireland's oldest survivor of epidermolysis bullosa (EB) and reached 40 with mixed emotions. She lives with fragile, painful "butterfly skin" and experienced bullying as a teenager. She established Emma's Butterfly Garden at the Killashee Hotel in Naas in 2012 to offer peace and support to people affected by EB. The hotel can be busy with events, which limits quiet access to the garden at times. Colin Farrell appears as a close friend and supporter. A separate County Chamber event featuring Simon Harris increased visible security at the hotel.
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