#childrens-palliative-care

#childrens-palliative-care

"The bikes we give are brand new, because part of it is the delight of getting a new bike. These kids have been in treatment for so long and can miss out on big stages of development."

"Offering science- and research-based health care to transgender and gender diverse youth is part of Children's Minnesota's vision of being every family's essential partner in raising healthier children."

One in every 17 people has a rare disease - I'm one of those people. I have mucopolysaccharidosis type I. It's more commonly known as 'Hurler syndrome', but even when I use that term, no one I meet has ever heard of it.

Resident doctors and interns at the Children's Medical Center have been pooling their own money with some donations to organise activities for the children suffering from underlying health conditions.

There is a piece of advice given to doctors in moments like this: Check your own pulse. Each person in the room has a role, and we perform it best with steady hands and measured voices.

At this stage, we believe the incident occurred within a domestic context, but we are appealing for anybody with information to come forward. The death of a baby was always an extremely tragic occurrence.

A Genexa survey of 1,000 U.S. moms found that 70% use their own sick days to stay home when their child is ill, and 58% work from home while caregiving. In other words, many of us are doing the same impossible math: caring for sick kids while trying to keep our work lives moving.

It is really, really hard. He said the family had 'cried and begged for help' in meetings at home. 'Does our family unit have to break down? Does it have to get to a point where we no longer sustain this and then they'll step in and give you support? Because right now that's where we're at. We don't have any alternatives. If grandparents were an option, we'd already be doing it.'

From reproductive rights to climate change to Big Tech, The Independent is on the ground when the story is developing. Whether it's investigating the financials of Elon Musk's pro-Trump PAC or producing our latest documentary, 'The A Word', which shines a light on the American women fighting for reproductive rights, we know how important it is to parse out the facts from the messaging.

I think everybody worries when they come to the last stages, no one knows what to expect, but these people are wonderful at relaxing you and they help you an awful lot.

Peter Dervin had spent all day by his son's side in Broomfield Hospital before he decided to get dinner. He pleaded with staff at the Essex facility not to leave his eldest child, Greg, alone in his absence. "They almost laughed at me and said, 'This is what we do. We're nurses and we look after patients'," Dervin recalls. Greg had been given lorazepam, an anxiety drug flagged by clinicians as leaving him prone to becoming unsteady and agitated.

Isla first went to the GP in July 2022 with a lump in her breast, but she was told it was likely to be benign and caused by hormonal changes. "She was told it was hormonal - a fibroadenoma - and she would grow out of it," Isla's father Mark said. Two years later, Isla became ill and was taken to hospital, where doctors suspected she had cancer and made an urgent referral for biopsies.

When Ph.D. student LaShae Rolle felt a pain in her chest, she didn't think much of it at first. A little soreness made sense: she was working hard in the gym, preparing to bench press nearly 300 pounds for a powerlifting competition. The pain came and went, but then Rolle noticed a lump in her breast, a textbook warning sign of breast cancer. It was a red flag she was deeply familiar with from her own studies on cancer prevention and treatment.

For decades, the gold standard for the coma-induction phase of euthanasia was thiopental. It was swift, reliable, and highly concentrated and rapidly induced a deep coma. In 2011, however, the European Union banned the export of drugs used for capital punishment, including thiopental. In the wake of the ban, manufacturers withdrew or tightly controlled supplies to avoid association with executions, making the drug increasingly difficult to obtain. "Thiopental is very difficult to get now," Horikx said.

February 20 is National Caregivers Day, celebrating caregivers everywhere, whether they are friends, professional caregivers, or family members, for the hard physical and emotional work they do that often goes unseen. Caregivers also include surviving parents trying to navigate their grief after the death of their spouse, while also supporting children who are trying to navigate their grief from the death of their parent.

When we think of rituals, we tend to think of face masks and wellness trends. But there are actually ways to use rituals to help heal grief and deal with stressful times. On this episode, Lucy Lopez, Elizabeth Newcamp, and Zak Rosen are joined by ritual expert Betty Ray to talk about creative ways to help children process grief and big emotions, how to use ritual to create safety and expression, and much more.