On Huntington's Disease awareness day, Charles Sabine, an Emmy-winning war correspondent, reflects on the life-altering moment in 1994 when he learned his father tested positive for the gene linked to Huntington's disease. With a 50-50 chance of inheriting this degenerative neurological disorder, Sabine chose to get tested. He now campaigns to raise awareness, challenge stigma, and work toward finding effective treatments, emphasizing the disease's severe impact on cognitive and motor functions. Huntington's disease primarily affects individuals aged 35 to 50, but can appear earlier or later in life.
Huntington's disease is caused by an alteration in the huntingtin (HTT) gene on chromosome 4, leading to the production of a harmful protein that progressively deteriorates brain function.
War correspondent Charles Sabine's journey began after learning of his father's positive test for Huntington's disease, motivating him to get tested and now champion stigma reduction and treatment development.
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